I know this is not a medical forum and i know some like it less, but it's driving me crazy and exhausted.
While the pet scan showed no cancer, it did show a high colon functioning (to what extend i don't know because the internist didn't gave me a chance to ask questions and threw me over the fence to the stomach doctor).

There was always a colonoscopy up in the air which i suggested and the stomach doctor at first was saying he didn't think much would came out of it, later he changed his mind about it. But because of my germphobia and needing to take laxatives, an endoscopy was the last thing on my mind.
But with the pet scan, it has become the last thing possible, but i didn't even had a chance to sit down and regroup after the pet, because of the thing with my mother which was another blow in the gut, which caused all my issues that i had to enlargen even further probably due stress.
Now i got nights when i wake up at 3:30 and the hot flashes are so heavy that i can't sleep any further because with those hot flashes there is nothing you can do, not a shower, not having a cold glass of water, nothing.
My stool was also becoming sticky, in which i took loperamide and that went well for 2 months, but now that's not working anymore.

I also underestimated the colon and possible effects on the rest of your body as yesterday i heared a story about someone's mother, who fell a lot (like my mom), frozen legs, vomiting and the cause was a clogged blood vessel in her colon, and if she waited 2 more days she would have passed away

Tuesday i get a telephone appointment and gonna press hard with him to give me an emergency colonoscopy, but with how healthcare is these days, might not be possible.

But i just thought maybe someone here had something similar and recognizes it, and can tell me if, what and how they got it fixed?

1 month ago*

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I appreciate the help but the thing with them is they tend to be generic and i never had pain, perhaps if only i did because then maybe doctors would have taken things more seriously and even myself.

I know i am going for a long shot asking if someone remotely recognizes such situation. The restless nights combined with all the other things is beyond exhaustion, like even waiting till that tuesday feels long.

1 month ago*
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Probably not the case, but the most obvious things first: do you keep heating in your bedroom low (18-19 C) and do you open your windows often? In winter its easy to overheat the room at nights while also having very dry air, which both can cause symptoms very similar to hot flashes or migraine. With a lot of stress lately even slightly unfavorable sleeping conditions could now be much more noticeable than usual.

1 month ago
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It's somewhat the case, i live in a place with this heat pump system, and with normal heating like at my parents place when you turn it to 21 it would be a sauna, if it's 21c here, it's still somewhat chilly, and even in the summers with 26c i have to sleep with a bed cover.
That system also makes it hard to quickly change temperatures because it takes a long time to adjust.

But even to about 5c outside i go out in a blouse and not my warm thick winter jacket, because i already get hot enough as it is, especially when you got groceries of 15-20kg, some people might think i am crazy probably.

But these things never bothered me until a year ago when many things sorta went south with my body, but yes there was definitely less stress.

1 month ago
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I've gotten "male hotflashes" or whatever they're called for years. No clue wtf causes them (had a pet scan a few years ago due to frequent migraines + chest issues but no cancer thank God). Anyway, mine sounds a bit different than yours, since mine is usually during the day and I don't hurt, just goes from feeling normal to suddenly feeling insanely overheated like I've been transported into sauna running full blast...

What works for me is my house has some vents on the 2nd floor that are in the ceiling so I remove one of the vent covers. Being on ceiling isn't that important, the point is covers distribute air to the side, removing the vent directs it in a straight line... And making sure is output not a return :-) 2. Take 30-60s shower cold as you can go. 3. Optionally (if you have kids/don't live alone) slightly dry off and dress as minimally as you can get away with 4. Stand directly under vent w ac on while still damp. And, yes, I've been known to suddenly turn the ac on for a few minutes randomly in the winter. I know. TBF, I live in the Southern US and it doesn't get that cold here vs where I grew up.

1 month ago*
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Thank you, It sounds somewhat the same, but mine usually tends to emerge at night or the mornings but it sounds very similar to what you are feeling and we both had a pet scan showing no cancer atleast.

Does it ever bother your head, like perhaps some sort of brain fog?

1 month ago
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Haven't noticed correlation between the two but I do get semi-frequent migraines and brain fog. Is weird bc I never used to get headaches in my 20s or even most of my 30s. But late 30s/early 40s, have not been fun in the migraines department for me.

I have an issue with my lungs where I get winded easily and it takes me an abnormally long time to recover, but was tested and do not have asthma. Currently unemployed and in the US so that's about as far as my health diagnostics have reached unfortunately. But I believe the lung issue and "hotflashes" to be related both in terms of started noticing both around the same time and that I generally have both problems within hours of each other.

Then again I also have a fair number of other smaller health "oddities" that have started in the last few years too like gerd if I'm not careful with my diet or feeling vibrations in the late hours (like sitting/standing, it sometimes feels like I'm in an extremely minor earthquake but it's just me... I'm not next a fault line and I've tested things thoroughly enough that I'm convinced the house isn't actually vibrating). AI guessed the latter could be some form of tinnitus but I also know how often AI is completely wrong so no clue.

1 month ago*
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I personally can't say i got lung issues (i think) but i certainly recognize the feeling of an earthquake in your body, like something inside you wants to get out, or your body is literally even shaking (what i am now experiencing).

I am mid 40's, and nothing was terribly wrong with me until after i moved my washing machine and dryer a few times when my cat left me a bunch of fleas and disaster happened ever since.

Ai is a horrible disease itself, people don't recognize.

1 month ago
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When I say earthquake feeling, I don't mean emotional... I mean, I really physically feel like there are minor tremors in the building or like when a large truck drives by and you physically feel the vibration more than hear it. Is so damn weird. Only been getting that symptom for the last couple months and thankfully not all the time but it still happens enough.

As for AI, you aren't wrong. I was just desperate to get some ideas other than what my own brain was panic storming. Getting tinnitus sounds a lot better than the things I was thinking... Tho not ruling anything out until I can get back on insurance and get a few more tests.

1 month ago
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I also mean it physically, like how i am experiencing it. I really do understand you completely on that, and gives me something like okay i am not the only one apparently.

Just as i understand you seeking a need for answers, you using AI and i use this place, we try anything, especially when you got doctors raising their hands in the air and basically tell you they don't know.

Do you experience lots of stress? I mean i experience a lot of stress and the passing of my mother is just a whole big bunch all together and a friend says how stress can do crazy stuff to a body, and i think that's also true.

Do you hear a constant ringing in your ears then? Yeah bad healthcare really sucks, hope it goes okay for you.

1 month ago*
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Oh ok, yeah, couldn't tell for sure so figured I'd be more specific. Sorry for the misunderstanding.

Sorry for your loss too, I dread the day I lose my parents and know that's gotta be hard. To answer about stress: yes. I find ways to trick myself into forgetting about it for little bursts but definitely there is stress between health, job/career stuff, personal projects/backlog, worries for family, and lost a friend to glioblastoma earlier in the year... So yeah.

I don't have any ringing in my ears but I do have a family history of tinnitus (my dad gets the ringing) but I've heard/felt The Hum for years, which is a large part of why I think tinnitus is at least a possibility. The AI had claimed tinnitus can sometimes present as feeling vibrations rather than hearing a ring. Could be complete bs but ears do tie in with how we perceive vibrations so kinda hard to say (for me anyway).

I've heard people with vertigo describe it and I don't think I have that. No dizziness or nausea either.

Other explanations I've seen online range from just side effect of stress, to vitamin deficiencies, to Parkinson's, to a side effect from the c-vac, and a few others. I have no clue if any of it's accurate tho. This reddit post sounded similar to what I get but I didn't really find anything useful in there aside from more theories I can't prove (def guilty of skimming tho). More or less the same everywhere else I looked. My plan is basically just to deal with it for now until I get healthcare again, then get my ears and head checked first. But if you find anything, would definitely be curious to hear your experiences.

Edit: oh I should probably add that I have really really bad insomnia and sleeping issues. So also possible some of thev above stems from sleep issues + stress.

1 month ago*
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Did these symptoms start after recovering from COVID or some kind of fever/cold? Because a lot of it sounds (all of it really) like the host of things you get from chronic fatigue/ME/long COVID, which my husband has.

1 month ago
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I've had covid before but I only really caught it once during the first big rush (afaik anyway... Sometimes it seems more mild). But I don't recall getting sick really at all this year. Unless the brain fog is just killing my memory, which isn't impossible.

1 month ago
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Yes, I've had these back when I was having serious stomach issues. Two things that've helped me in the past are drinking pure lemon concentrate (ultra-bitter, but the extreme acidity helped my system break down whatever was messing it up, was also useful when I had a kidney stone), and the probiotic "Align".

1 month ago
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Thank you, i was taking bitter lemon, but being soda that probably isn't good enough, i could try your idea.

What do you mean with probiotic align?

Did it also mess your head, like brainfog?

1 month ago
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For the probiotic, I took a version of this pill (the exact one I took doesn't seem to be sold anymore, but I think this should be the same formula): https://www.amazon.com/Align-Probiotics-Supplement-Digestive-Probiotic/dp/B00UVAHDBS/

As for brain fog, hard to say since I suffered from two concussions as a child (the more horrific of the two resulted in a blackout and required some reconstructive surgery) which sadly resulted in me having to deal with memory issues and brain fog basically my whole life. Getting a blow to the side of the head from a large metal tool a few years ago probably didn't help either.

1 month ago*
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Thank you, yeah you got many forms, like Yakult, usually pretty expensive though.

Sorry to hear you had to experience that. Did you go to a neurologist and get a brain scan?

1 month ago
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Stay strong brother

1 month ago
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Thank you.

1 month ago
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Sorry, I seriously have no idea.

Have a bump so at least more people see this and may help you.

1 month ago
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You should definitely push for the colonoscopy, it is no fun and the laxatives you need to take even less so (Ive had quite a few), but it is the best way to be sure if there is anything off going on there. Loperamide is great in the short term, but it can be harmfull if taken over extended periods. If you need to deal with diarrhea bismuth usually works great, but of course it wont deal with the actual cause behind it.
You should get a stool sample tested, and also bloodwork.
No idea about the hot flashes though.
Hope you get better soon.

1 month ago
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The test itself not being fun i know but i can handle, but yeah the laxative part is an issue, my stomach doctor told me before it's a must even if i think i been probably been to the toilet before but the receptionist told me if there is an emergency i can come the same day and then the laxatives can be forgotten? I don't know.

I have had many extended blood tests, they come clean. Since there was also no pain i always thought it could just have been a hemmoroid issue (and the stomach doctor did too).

Thank you.

1 month ago
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The laxatives are a must, if the pipes are not clean there is only so much they can see, and they usually will reach a point where they cannot go any further due to obstructions of fecal matter.
I don`t know what the procedure for an emergency colonoscopy is, maybe they just use an enema to clear some of it and hope for the best. For a scheduled colonoscopy you will usually have a mostly liquid diet the day before (broth, jello, stuff like that) and the day of you start taking the laxative several hours in advance along with a lot of fluids and wait for it to take effect,then sit on the toilet for however many hours until nothing more comes out. The procedure is usually performed while under sedation, and it might be both "high" and "low", meaning one of the probes or whatever they are called goes through the mouth and the other through the rectum, otherwise just through the rectum.

1 month ago
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I understand that part being empty, so why the emergency thing is so confusing.

I trained myself to only having to go in the mornings, then i take a shower and i am done for the day and why i always have clean underwear too (has to because of my germphobia thing) this is seriously going to mess with that i am afraid.
But i also most likely not have a choice anymore.

1 month ago
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Dysautonomia would be a thing to look into.

1 month ago
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Thank you, i will.

It also mentions post covid, and i also thought about that, but it's also been a vague thing to me, and i don't know if doctors can always even recognize it, i don't believe there are just standards tests for that.

1 month ago
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Long COVID is definitely different for everyone, so it's hard to know what to look for.

1 month ago
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Long COVID and Chronic Fatigue Syndrome have no standard tests at this time. If you rule out everything else, and you have a set of general symptoms, then they might think to label you with the syndrome. But there's also no cute at this time, and it's largely "treat the symptoms". There's been some promising research suggesting it could be the effect of micro blood clots and other various things. Brain fog, having exhaustion that goes beyond normal ('counting spoons' level), sometimes random nerve activation, low lung capacity, digestion can be affected, depression, etc etc. But the suite of symptoms varies per person. (As Taco noted.)

1 month ago
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1 month ago
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I don't know what to say. My mother had a long-term intestinal infection (more than two weeks). A course of Nifuroxazidum-based medications helped her.
From my past, I suffered for a long time from frequent poisoning for a long time, including very severe ones, and constant pain in the liver area for 15 years. No doctors helped. I accidentally decided to take a blood test for parasites. The tests showed opisthorchiasis (parasitic infection of the gallbladder and ducts). After treatment, I gained 10 kg for a month without changing my diet. For 10 years now, there has been no pain in the liver area or monthly poisoning
I'm sorry for my English, I'm using an auto-translator.

1 month ago
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Thank you, i will look into it.

1 month ago
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I know you asked for male, but estrogen imbalance can cause digestion issues and hot flashes in women, so there definitely times where hormones out of whack can cause weird symptoms that seem unrelated. Definitely worth getting your digestion further checked. Perhaps the digestion problem is kicking off some secondary thing to cause changes.

(My husband did have way off the charts estrogen from an illness. Eating flax (cold pressed something) and changing his diet helped reduce the imbalance... eventually. Just in case some other diet things might help you as well. The doctor didn't want to run a broad test to see what things were swinging wildly, and totally didn't help when we found his estrogen was crazy high. Mood swings, male breast tenderness, all kinds of fun effects. But this is probably a weird unlikely occurrence.)

1 month ago
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Thank you.

I have had many blood tests, even extended ones, don't really know anymore what was checked and what not.

Well the body can do crazy things, even stress maybe.

1 month ago
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1 month ago
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Well, it's really hard to help as it could be a lot of things. In fact, intestinal issues often work together with your nerves/brain, so the whole situation you just passed and the fact you are worried all together could do it on it's own, if it only started recently that is.

Now, there's plenty of issues you can have in your colon/intestines and not truly be life or death but still rather annoying... but can't really tell what, there's really quite a few things. Inflamated (sometimes IBS), a bactery has I had in the past which screw me a lot, I had to take a ton of pills and did a lot of exams to figure it out. Chron's which is highly missdiagnosed, a not so nice disease but that can be "managed" and so many others.
I hope you figure it out and it's nothing serious. It always suck not truly knowing what could be screwing with you.

1 month ago
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I got hot flashes since summer, but last few weeks it has grown, it's pushing my mind/nerves into a very deep state that really compares to a living hell at times (everything also feels bad, every breath, every step), which creates more stress and you end up in a circle. But it's all with such an intensity that i don't want to grow old with having that constantly.

Thank you, and yes it does, well with a pet scan and other stuff i pretty much done anything else beside the colonoscopy, if they won't find anything again there either i am at a loss.

1 month ago
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I know my boss used to have a really hard time too due to Chron's but it could be something entirely different. The most common is definitely IBS but it doesn't 'cause hot flashes but the rest could, or as someone said could be hormonal Endocrine imbalance but if you made so many exams I guess they would likely have found it or suspect it. So I hope it's something a lot easier to fix, like so microbiota issues that take some will help balance and fix or so. EIther way, hope you'll get better soon.

1 month ago
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Generally colon issues aren't associated with hot flashes - usually they are associated with hormone deficiencies.

Sticky, more wet, horrible-smelling and paler stools can be a sign of pancreatic issues. (Chronic pancreatitis can be brutal)

I really do wish you all the best, I hope you feel better soon. I'm no stranger to medical issues

1 month ago
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Thank you.

1 month ago
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With regards to 'getting it fixed' - if you do undergo a colonoscopy, ask them to check your pancreas (the testing can involve ultrasound, but the ultrasound can only be done from within your stomach) - also ask for a battery of pancreatic health bloodtests.

Unfortunately, pancreatic issues such as chronic pancreatitis aren't prioritised. (if you drink, I would advise quitting entirely if your body is giving you hot flashes for any seemingly non-connected reason)

Let me know if you want any more advice

1 month ago
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I don't know anything about the hot flashes in men, but I'm chiming in here because you stated germophobia as a reason to refuse a colonoscopy.

Lugum, a friend of mine whom I've known for a long time passed away 1 month ago and he had just turned 43. He had been diagnosed with stage 4 colon cancer and fought it bravely over the past year. He said himself had they done a colonoscopy when he was 40, they'd probably have found it and he'd be in a much better place. Now, I'm not trying to scare you, but if a question comes up for needing a colonoscopy, just get one. Then when it shows up nothing. You can relax. It's really not that bad. You take the laxatives and it's not like having diarrhea when you're sick. You don't get the stomach aches. It just cleans you out completely. If you do it right, all that comes out is clear water in the end. It's like a complete cleansing of your gut.

I myself am a breast cancer survivor (got it in my 30s), and I would encourage anyone that is offered a colonscopy or any test like this to go and have it done.

I've had to have a colonoscopy myself after I finished my treatments in 2022. I dreaded it, but it was fine. The worst part is taking the solution actually. It's like "hold nose, down hatch."

1 month ago*
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Thank you for sharing, appreciate it, especially the laxative part that makes it a bit less bad in my head, maybe wrongly but i also thought it made you want to go for hours long.

First, sorry for your loss. I think the pet scan i had should rule any cancer out, also there, doesn't mean offcourse there can't be other stuff.
Germphobia is a reason, but i also never expected a colon to have such impact on the rest of ones body too, i thought worse case you get some stomach issues maybe, until i heared that other story. But i also kinda hoped and expected that all the other tests i did, something would come up too.

Today i have a telephone call with my stomach doctor (couldn't get an appointment sooner, that division is also the worst to get through lines always being full and they tell you to call back again another day).
I know they are giving emergency colonoscopies, but i don't know how they do it with the laxative part then, so yeah it's waiting for now.

Hard as it is for me, it would be foolish not to do it, and i don't think i can get around it anymore. But i can't relax if for some reason they won't find anything because then i basically have done most tests and doctors seen and with how things are, it's very hard to live with this on a daily base.

1 month ago
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You won't necessarily be going for hours long. It kinda has a window where it works, if you get what I mean. You will go several times. But like I say, you aren't sick with it, it literally just feels like you're getting a cleansing. Once you keep your bathroom free, it's all good. lol.

I'm glad that you're getting it done. It just rules out anything. And if there is something like diverticula or something like that, you know what it is and can adjust your diet. My dad has that.

I have had to have another one a few months ago (3 years apart). I have IBS caused by the pain medication I was taking for years while on a waiting list to have my back done. Having gone through a colonoscopy before, the only thing I was dreading was having to drink that stuff =) Again, they thankfully found nothing. Like, we were going in with "probably nothing, but just in case." They run tests like that on me because of my cancer history, but I don't mind.

4 weeks ago
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Yeah i get it, and also differs per person probably and how much you eat (which isn't a lot).
It's weird you are going to have to wait until a certain yellow/green color comes out and then it's good.
Also don't know why you have to do things twice though instead of just once but oh well (i mean once would have been easier for me).

It seems very secure, like you can't eat anything with seeds.

What is diverticula (without googeling it?).

Nah i think there is something a bit more serious then a diet thing because of certain things i am experiecing, they better not throw IBS on me because you can't really do much about that.

So the laxatives don't taste well?

Well with a cancer history it's always good to keep things checked.

4 weeks ago
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I am going to get one done, but might still take a few days/week.

4 weeks ago
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Good man! You'll be glad you did it.

4 weeks ago
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I am not really convinced yet, and if they won't going to find anything, i am going like why did i went through all that trouble for nothing (again)? And leaving me with questionmarks on what i do have.

Also the doctor wants me to have someone with me because of the morphine (but i don't have anyone) or stay there or not get morphine at all, i am not sure how smart that would be to do it without morphine.

4 weeks ago
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They don't give morphine, as far as I'm aware. They give you a mild sedative, so you are unaware of what's happening.

OR they can do it without said sedative.

When I got it done the first time, there was an older woman there, I'd say in her late 40s and she said to me "this is why I didn't get knocked out, and it wasn't that bad, some discomfort" and she was getting dressed to leave. They wouldn't let me leave until someone came to pick me up because I went under the sedative. lol.

The second time I had it done, I drove to the hospital. Then my sister and her boyfriend came down when I was ready to drive the car home.

4 weeks ago
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I thought the doctor said that to me that that sedative was something morphine like, but maybe i am wrong, now i am not sure.

That could also differ per person (on what their pain limit is or how the colon is) maybe.

I go with a van driven by volunteers which parks in front of my home and at the hospital, why i said to the doctor i didn't needed anyone to help me, but he didn't want to risk it.

When i had eye surgery and was under narcosis, i went home right when i woke up. In america you sign a release if you choose yourself, here not.

4 weeks ago
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It is the same here. I'm not American. =)

4 weeks ago
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What is the boy/cat thing on your steam avatar from?

4 weeks ago
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https://store.steampowered.com/app/1069740/Seen/

It's from this game called "Seen." I don't own it, but I liked the look of it. My steam background comes from that too. I think you have to own the game now to get stuff from the points shop, but at the time, you didn't. lol.

4 weeks ago
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Thanks.

4 weeks ago
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Sorry, I promise I'm not spamming intentionally.

Regarding other symptoms to look out for if it's pancreatic - you would burp &/or be gassy all the time, you would regularly feel sick, likely have reduced appetite, not eating for too long makes it worse, and eating fatty foods or too much food makes it worse, unintentional weight loss. Alcohol and smoking chronically, increases the risk of permanent pancreatic issues.

1 month ago
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