... I'll never give up.. but... I'm sorry. T.T ...

I've been twenty years away from all I ever knew... to return would make my dream... come true.

I am no longer going to keep this PSA going. It violates steamgifts terms which state:

"When posting links or content, that content should not force users, encourage users through reward, or primarily exist as a traffic source for users to perform an action for promotional, commercial, or monetary benefit. Such actions include but are not limited to clicking a referral link, liking a Facebook page, following a Twitter account, joining a Steam group, completing a survey, or making a donation."

Currently, everything on steamgifts, including entering a giveaway, breaks this rule. Nobody would enter if it did not encourage users through reward. It's not guaranteed, but neither are any other types of things being flagged as "bad" vs "good".

If anybody wants to continue this thread/post, I will be more than happy to allow such a thing.

I will win. But. I can't do this... not right now. Please keep it alive in your hearts and minds - and spread awareness to others!
We are saving lives. This isn't a joke, or something fun. It's real. The horrors of lyme are real.
Never... never... never ever knew... this could happen to me or anybody else for that matter. Please. Be grateful for your own health.

Live your life strong... and do things I cannot do. Please live life for me - where I couldn't be strong enough... you can! You will succeed! Be that person I wanted to be. The person I would have been, had I not gotten sick... as one of the healthiest people around before a damn tick destroyed me... at least up to now. One moment in time. It destroyed it all...

Please never forget your health... and how important it is. We only have one life. Don't waste your chances!

Please send me a message through steam if you wish to keep this going!



A friend of mine, JerichoOfRivia mentioned a while back that I should create a post about this on Steamgifts. I sort of considered, but I didn't know if I wanted to go through with the effort. I've decided to incorporate lots of giveaways into this and try to keep it bumped here and there when I can, and I hope some people will consider doing the same. It's a rather touchy and important issue, and I didn't know really how much I wanted to go into it, or what I would say. Here's what sprung from my mind, so I hope it will get my main point across without being too much about me, but it will be mainly about me, since I am one of many suffering from this disease with no cure.

Some of you already know this, since I mention it in comments here and there, but I have lyme. I was bitten by many many ticks when I was 11 and 12 years old, during the time of some experimentation being done on mycoplasma germs about 30 miles away. I also coincidentally happen to have a very debilitating form of mycoplasma. I told doctors I was sick for many years after my body started to tell me it wasn't well, but they did not believe me. I got progressively worse as time went on, starting with neurological symptoms, progressing to nerve sensations and pain, and then overwhelming fatigue. I was told it was in my head, or that it was all due to depression. Some doctors told me I had growing pains when I was still fairly young, and others blamed it on lack of exercise. Why would they even say that, when the whole reason I was complaining is because I could not do the things I used to do?

I used to run close to five minute miles, but now I'm lucky if I can even make it upright for five minutes on my really bad and fatiguing days. Running and doing other active things outside was sort of my downfall. If I had stayed inside leading an inactive lifestyle, I wouldn't have had nearly as many chances to get bitten by ticks. I started to lose faith and trust in all doctors, since they kept ignoring me when I told them I was sick, and as all the medical professionals I saw gaslighted me into that belief, I eventually believed I was imagining it all, that it really was in my head, so I gave up for a long time. Certain things helped me over the years, and other things seemed to help, but also caused me other problems. I am surprised I lived through this, and that I continue to be as strong as I am. I might just be lucky, since it hasn't yet attacked the places where it can with others, causing death within months to a few years.

I have over twenty various conditions, most chronic and some fully systemic. Some I can slow progression by taking supplements and other things, and most have no permanent cures. Some will take constant medication, and some can be prevented to a degree, or at least masked to some extent. There have been times where I've taken over 60 pills a day. On average I'm probably about half that right now. It's very hard to live like this, and when I was healthy, I never imagined a person could feel this way, even on my worst days, or in my worst nightmares.

When somebody asks me what it is like, I explain that it is like a constant flu most of the time, but instead of being able to sleep through it as a sick person would, and having it go away in a few days, it never ends. On top of that, I have to perform and function in life while I have the flu, unlike the people that get a lot of rest. They get better. I cannot rest twenty-four hours a day, and it's pointless to do that, since my muscles would only atrophy, and it's too painful to sleep for very long periods most of the time anyway. I have a lot more symptoms constantly barraging me aside from a simple flu, but I describe it this way, since most people know what the flu is like. The other stuff is a bit more difficult to get into with somebody healthy.

I have learned a lot about living on the other side of healthy that I would never have known, had I been treated properly. I think this disease and many others it causes are ignored so much because of the fact that nobody believes you are so sick, and most minds cannot comprehend something so devastating without actually having experienced such a thing, so they have a natural form of denial about it. Many people with lyme can do things at times, so on the outside they look fine for short periods of time. Other times when nobody sees them, it may be a different story. Many times the recovery period for doing the seemingly slightest things can be quite harsh. Other times I do a lot more, and it doesn't hurt me later. Most of the time I don't notice the hurt, because I already am hurting worse all over. It's not something somebody can ever see, like a missing arm or leg, for instance. The neurological effects are the same. Mental health is a sad thing to examine in today's world. I have test results of some things showing problems, like seizure disorders, but not very much evidence, since the brain is so complex. Most tech is very new, and hard to get to without large amounts of money. I found a place to work on some of my neurological things, perhaps, but it's over two hours away. My insurance is ignored by most doctors in the area that could help because I am on government assistance since I can't work. It is a form of discrimination that is ignored by my government.

I have only some tests that can show much of anything. Lyme tests are not very accurate. Probably well over half the tests give false negatives. Some people have gotten 10+ tests showing they have zero lyme, and they "suddenly" end up with a positive one. Also, many people do not get the "bullseye rashes", possibly as low as ten to twenty percent. I never got one that I noticed, but after many tick bites, my body started acting crazy, and I had three breakouts of strep in a single month, with full body rashes at 11 or 12 years old. I have gotten 3 or 4 lyme tests so far that are equivocal, and as close as you can be without an actually considered a positive result. I am probably too far into late stage lyme to get a pure positive result, since my antibodies are too busy to show up anymore on a high level, and the lyme learns to outsmart these tests over time, as has been proven in multiple studies and scientific tests, but I am being treated based on symptoms, and my close tests together.

I am one of many that gets toyed with by medicine on an unending quest to find out the truth. Doctors seem like they are useless many times, and will not help. It's really sad when people with that much power choose to not help you, and let you suffer. Some people can get away with almost anything though, and this is especially true of people with power over whether somebody lives or dies. In many cases, if they'd just drop the all-knowing ego a bit, listen to their patient, get into action, dig a little, offer choices, and maybe believe their patients, then a difference could be made for some of these people who are sick. I was not making doctor's appointments to have a fun time, and I don't think it should be put off so lightly.

People are probably sick if they have to call a doctor. Even in the rarest of incidents where they really are hypochondriacs, this is also a sickness that needs to be examined and treated if there really isn't anything wrong. Something in fact is wrong on some core level if they are looking for medicine to help them in some way. It's a cry for help no matter how you look at it. There is no reason to completely ignore human beings who are asking for help. That's what they are supposed to be there for. I guess some forget that along the way, or something. I don't really understand the lack of compassion for others. Some responsibility and accountability would be nice from people in these powerful positions. It's on them and their conscience though. I'm glad it's not me.

I consider myself and my situation a test for others. Will they do the right thing when they have a chance to offer me something, as a sick person? Will they ignore me, when they have a chance to be there for somebody in need? What would the spiritual people of the world do in these situations? Other creatures in the world, and other tribal settings accounted for the sick, and the rest of the group would look out for them and try to make them well.

I don't think the government wants me well here, to be honest. I make them far more money being sick and on the system, as a cash cow for Big Pharma, and whoever else is profiting. It is a win win for them if I struggle, because I have to either pay up, or I die. If I got better, I'd be a direct threat to their jobs, and that's dangerous when it's somebody who has been through hell already. We lose the apprehensions that healthier people tend to have, and we know what it's like to have nothing. Many times those kinds of people take less for granted, and can do a better job, since they don't want to go back to the way it was, being miserable and having next to nothing.

I know this is getting to be a long-winded post, but I want to raise awareness about third stage lyme, and that it can indeed become chronic and wreak havoc on your entire body. I think most if not all of my current conditions probably came from lyme, and I don't want other people to end up like me. There is very little I could think of that would be worse than living a lifetime with the pain, tiredness, torment, and expenses of dealing with problems like this. I cannot work because I am too sick, but I need to get better in order to work again, and so that's where the bulk of expenses comes from. It's a catch 22.

I'm also including all the years I could have had an income, and I did not. In society, they want you to work, but if you're too sick to work, then you must get better, but if you cannot pay for treatment, then you remain sick, unable to work. It is a vicious cycle, and yet another facet of medicine I will not get into. There are even organizations like IDSA, that say chronic lyme does not exist, and people in the medical profession think highly of this organization, and they believe this garbage. It's maddening that so many people are overlooked, and considered hypochondriacs, or mental, depressed, or whatever they want to mis-label so many people that are suffering.

Enough about me. Please remember a couple of things:
Also just a disclaimer of sorts that I am no expert on removing ticks!
The information is what I've come to believe in my own experience based on the sources I read and trust most. There isn't a lot to go on with ticks/lyme.

  • There is a lot of bad information out there about how to remove ticks. One way that most people have access to is a pair of tweezers close to the skin, and a steady pull directly away from your body, without crushing, jerking or twisting, is best . If it's too fast or hard, you can leave the mouth parts embedded under the skin. A distressed tick can also regurgitate a lot of dangerous disease-causing germs into you if you try to use other methods to remove them, like suffocation or burning.

  • If you, a pet, or somebody you know gets tick bites, try to get treated with antibiotics as soon as you can. Push for at least 4 weeks, if possible as well. If your doctor will not get you at least 4 weeks of some doxycycline antibiotic by choice, find another doctor. I guess different areas have rules. I would check the rules for my area, and get the largest amount of treatment I could as early as possible. This can ruin your entire life. Not something to take lightly.

  • It's one of the most underfunded medical problems in my country, yet as many as 300,000 new cases spring up each year.

A quote from lymediseasechallenge.org says, "Although the number of new Lyme cases annually is staggering, there is relatively very meager support for research funding. Indeed, although the annual incidence of Lyme Disease is higher than that of breast cancer, hepatitis, colon cancer, Multiple Sclerosis, HIV/AIDS and West Nile virus in the United States, unfortunately federal funding of Lyme Disease has been extremely disproportionate. For example, Lyme Disease occurs 6 times more often annually than HIV/AIDS, yet it receives less than 1% of the funding from the National Institutes of Health compared to HIV/AIDS. Likewise, there are 141 times as many cases of Lyme Disease than West Nile virus, yet Lyme Disease receives less than half of the funding for research."

There is a lot of good information out there, and a lot of misinformation as well. There are organizations like ILADS, that I think come closer to the truth about lyme disease.

Please consider adding Lyme Disease Association to your charity list if you use HumbleBundle, Amazon (AmazonSmile), or other places you may have an option to donate to for charitable causes, if you don't really have a particular charity you are set on using. About 96% of all money that is donated here goes to causes that help spread more information and education on lyme, as well as other important missions, including finding lyme doctors for people, since a lot of lyme doctors try to stay under the radar in fear of being prosecuted for helping people with lyme. Hopefully it's okay for me to mention that, but if not I'm okay removing the organization.

Unfortunately, according to many states here, and their rules, things like Lyme shouldn't be treated with long-term antibiotics, but having acne is a different story, and long-term treatment of acne with antibiotics is okay. Doctors in many states trying to give antibiotics long-term for lyme have had their licenses revoked, and some have been jailed. It's very bad in some other countries as well, such as Australia. Just an example here, but there's something deeply corruptive at work here in the USA with double standards like the mentioned one above. Lyme can and will kill, while acne is more cosmetic. Anyway, the above mentioned charity is located in the town where my lyme doctor practices too, Jackson, New Jersey.

I found out I had lyme disease after living with my problems for over twenty years. I now have a real diagnosis. I feel liberated.


Please bump for:

  • The generosity of myself and others, and awareness of lyme!

  • Good karma!

  • Your own conscience, health and well-being!

  • To make me happy to add current giveaways!

  • To increase the likelihood of me adding even more giveaways at a more frequent pace!

  • High non-bundle giveaway chances in the future if it can get enough activity! So far not so good on the bump % - still dropping one or two non-bundles every now and then... but the % of joins vs. bumps just ain't up to snuff. Sorry, but it's kinda expensive, so just a small effort would be appreciated if you take the time to join something. Rude otherwise, IMO.

If you're feeling generous and would like to make a giveaway, this format below is awesomely appreciated!

[Superfabs Is the BEST EVER! - Level x+](http://www.steamgifts.com/giveaway/MaR10/MUSHROOMS) | your contributor name

GIVEAWAYS: (I will update this regularly, if I can, but I mainly wanted to express awareness unless something catches on).

*Let me know if you notice something that's already expired, and I'll remove, since I may not notice right away!


Thanks to D3D for this one!

Abalone (ends 1/1)

Thanks to Corran for these!

Beholder - Level 3

[Sniper Elite V2 - Level 3]](https://www.steamgifts.com/giveaway/36k15/)

Resident Evil Revelations - Level 3

Thanks to dubnio for these!

RUNNING WITH RIFLES - Level 4+

Seasons after Fall - Level 4+

Jalopy - Level 4+

Super Mega Baseball: Extra Innings - Level 4+

Jet Racing Extreme - Level 4+

SAMOLIOTIK - Level 4+

Loot Hero DX - Level 4+

Tap Heroes - Level 4+

No Turning Back: The Pixel Art Action-Adventure Roguelike - Level 4+

Lead and Gold - Gangs of the Wild West - Level 4+

Gunspell: Steam Edition - Level 4+

Thanks to insideone for these!

Scrollonoid - Level 3+ | insideone

HEXOPODS - Level 3+ | insideone

Dead Dust - Level 3+ | insideone

Purgatory II - Level 3+ | insideone

Lantern of Worlds - Level 3+ | insideone

Super Blasting Boy - Level 3+ | insideone

Thanks to Kyrrelin for this one!

Punch Club

Thanks to Vee79 for this one!

Galactic Fighters - Level 1+

Thanks to Zorskan for these!

Rise & Shine

Pinstripe


Thanks for all of the support!
LET'S KEEP THE AWARENESS ALIVE!! THAT'S WHAT THIS IS ALL ABOUT! PLEASE COME BACK TO BUMP HERE AND THERE

7 years ago*

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I'm sad to hear you've been through all of this (and still going through).
I didn't know about it before, so I just read up some articles now. It definetelly made me aware of what I should do in case I ever find a tick, thanks for that!
I'll pick that as a humble bundle charity, altough is not very much :)

Wish you all the best

7 years ago
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I'm thankful you took some time to look into it a little bit. There is this saying here that, "One ounce of preparation is worth a pound of cure." Well, it's imperial measurements, but the point is just a little bit of knowledge or care before something happens can save a lot of problems if there ever is a situation dealing with that subject.

Yeah, the charity thing is not going to be huge, I don't think, but every little bit helps. It's a shame there is so little money here in my country to study this, when there are so many new cases each year. Things are improving though, for doctors and patients with lyme, and treatments being allowed and protected by laws. I see it slowly becoming more important, but it will take a lot more time, I am afraid... I will not give up, and I'm glad I have a lot of people in my life, both around me, and on places like steamgifts, to help with that. It is nice to have support, and read the overwhelming amount of kind comments here on the post I just made yesterday already!

Thank you and I wish you well too! Oh! I actually finished Rock of Ages a few months ago (one of the first games I won on steamgifts). It was very funny, and the concepts were cool. I'm not much of a strategy builder type, but it's wasn't extremely heavy into that, so I was okay with the little bits of that, and controlling the boulder was great! Some crazy bosses and levels. I got all the coin things though, but didn't 100% it. Maybe one day (I have a special tab in my games that is called Missed 100%, so I might go back to some at another time).

7 years ago
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I'm just a thief!I haven't played the game.. I just stole their image for my profile:D I'll get it and I'll try it out next time it will be on sale.
Glad to see you've got lots of positive replies here.. and I also see that you responded thoughtfully to most of them, thats nice :)

7 years ago
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Hah! That makes it even better (the Rock of Ages thing)! And yeah, it's good to see the nice comments. Glad it has made a difference!

7 years ago
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bumpety bump

7 years ago
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super bump :)

7 years ago
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Sorry to read that you had to go through that situation, going to a doctor its kinda a lottery, and if you dont feel conformed with their opinion, you should go and ask for a second opinion from a different one :(

7 years ago
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Yep, I kept hitting walls everywhere I tried with second, third forth opinions, and so on. I was also young, so my parents were in charge of a lot of that. I think after several doctors said I was fine, they even tricked them into believing I was mostly okay... It's so far back it's hard to remember, but we did try a lot of doctors over time. Eventually when my symptoms were considered completely mental, I was taking antidepressants and things like that under the age of 18. I think they caused a lot of damage. I won't touch any of them today - I learned that having bipolar disorder is a big one with having adverse reactions to normal antidepressants.

It's kind of hard to figure the mental issues out, since one can look like another, or several kind of have similar traits. Almost like art, since there are no tests. In other medicines here, you have to get a positive test for almost anything before they'll diagnose something, but in mental, they just say you have it, and you have it... I think most of my own mental things are coming from Autism Spectrum, but I'm still working with a doctor on that to find out if that's the case.

7 years ago
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Thank you for sharing your history. I'm glad you got a proper diagnosis!
Best wishes to you and get well soon!

7 years ago
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Thanks! I'm doing all I can - very good diet, lots of healthy supplements and vitamins, and just trying to maintain a good positive attitude. I think it is sometimes reflected on steamgifts where I comment, but that's just how I am. I have my moments where I get upset, and who would not, dealing with a lot of bad problems, but I only let that stuff win if I give into that... so most of the time, I try to be happy, in spite of my conditions. Then I am winning that fight when it cannot bring me down. Thanks again for the kind words!

7 years ago
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View attached image.
7 years ago
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So far, it looks like I haven't done too bad here ... ^_^

I'm glad it has helped at least one person. In that case, it's better than not doing anything at all. I wanted to do this for some time, but didn't know what all I wanted to talk about. I just let it flow, as I had set an action plan to work on this during the week...

7 years ago
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Certainly sounds horrible, hopefully you can find some way to get better.

7 years ago
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Yeah, there has to be something out there! So much untapped potential out there, with all the tropical plants that have been used to heal things, and some chinese medicine (most I read a lot on before diving in, since I am skeptical of some of it), and of course medicines for just dealing with my symptoms. I'm sure there is an answer somewhere - I hope I find it too!

7 years ago
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<3

I'm always rooting for you.

View attached image.
7 years ago
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Yeah... they really don't get it until they have something similar in many cases. My lyme doctor has lyme disease too, and her husband was one of the first to pioneer lyme treatment. He had lyme at some point - and would try all treatments on himself before trying it on his patients. They couldn't go to school in this country for proper skills, so they had to go out of the country to learn what they planned to get into. Unfortunately, my lyme doctor's husband died from the lyme after helping many people. They know what lyme can do, so I have a lot more faith in my lyme doctor right now than a lot of other doctors, so I think I picked a good one.

Thanks for your support, and I'm really glad to hear it! And yep, I knew you were!

7 years ago
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7 years ago
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Definitely! It's one of those days that I will never forget. The detail is imprinted in my memory like it just happened... I have a lot of brain fog and issues with short/long-term memory, yet that one is crystal clear. Something one just doesn't forget... I'm happy to be on the path to recovery. I quit smoking and drinking (well I quit drinking about 13 years ago) to get in better health, started eating better meals, though I splurge on candy and chocolates and other sugary things often. I gave up caffeine for a while, then said screw it, it makes me actually feel better. I will do my little breaks to keep myself from having the bad migraines that I would get if I drank it every day for half a year and stopped, for instance, but yeah... many with fibromyalgia and chronic fatigue feel worse after caffeine, but I like it! It feels relaxing to me, and sometimes I even drink coffee before bed to help me fall asleep. I definitely care about my health again, compared to when I gave up and didn't... It's been a good three years for my recovery, or at least putting myself in the best shape possible to recover.

I'm going to finish my Rockstar energy drink now as I'm going through these... ^_^

7 years ago
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yes there is a kind of epidemy with those ticks (number of them) and lyme (some researchers say every second tick have this disease and they name ticks not as a parasite but as a active predator). i wish good health.

7 years ago
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Yeah... they are a definite threat to humans, especially if they find for sure it can transmit through other means, like passing from human to human... If it ever evolves to something like that, almost everyone's screwed without an antidote! They are vicious, they don't give up, and they are hard to kill!!! The outside carapace (or whatever the word would be) - it's like a rock! I think they've been screwed with, but I won't get into the whole history of the tick - they were used in experiments though in the 20's and 30's and beyond. Many biochemists say that the protein structures are not natural, and seem engineered by something else. Lyme was around long long ago, but the sudden viciousness of it now, in comparison to the last few thousand years.... it didn't go on an exponential curve or anything like that, so it seems they were tampered with, and it just got out of control!

Hard to know the truth unless you're actually there, but a lot of evidence and some proof as well with documentation that stuff was going on in some of these places like Plum Island in the US to cause a lot of the tick problems, as well as some others that escaped. One took out a lot of horses in the northeast area a long while ago, and another removed an entire species of goose. The place is shut down (Plum Island) thank god... but a lot of damage was done I think. The amount of security violations they racked up, just out of what is known and was caught... it's phenomenal - their total lack of care about the fact that they were dealing with germs that needed to be locked down and contained to the maximum at all times. This one book, Lab 257 was an extremely powerful read on a lawyer that started looking for answers, and dug up a lot of very interesting history about the place, with plenty of sources. I really enjoyed it, but it also disgusted me at the same time, that something like that would be allowed to happen.

Thanks for the good health wishes. I am on my way!

7 years ago
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and this is why awareness campaigns are important. God bless you and your struggles. Know that the peeps of SG are here for you!

7 years ago
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Thank you very much, and God bless you as well!

7 years ago
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Bump

7 years ago
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Bump!

7 years ago
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Hi fabs! Brave of you to make this thread and raise awareness. I support Lyme Disease Association ever since we chatted about your disease a while back and it's an easy way for all SG-members to support the quest for finding cures for this disease so hopefully more will do the same.

To help your thread to get bumped a bit more I made this ga. It seemed appropriate :)

7 years ago
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I just added it, and thank you!

I remember mentioning doing that large train, and decided to take your advice and wait until later in the year, due to the summer and all that. After some thought, instead of doing the gigantic train, and risking multiple bad keys (I anticipate I'd have 10 - 15 at least with no backups to trade, really - just on my 120, I ended up having to trade or make up for 3 or 4), I figured it'd be better to create this topic and just keep adding those to it steadily, while also adding to the groups I'm in and doing a few public ones too here and there. Sounds like a better plan, since I'm afraid about paying for a lot of keys all at once! Plus, it takes soo long just to do 100, let alone 700, or 1000, or whatever it would end up being, if I stuck all of them up at once.

7 years ago
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Sounds like a better plan. And with this awarenessthread you give some meaning to the ga's which is a big plus. Hopefully people who've read it will be more considerate to people with lyme, will be more careful themselves and maybe even support LDA.

Besides that, I hope the massive response you're getting here will do you any good. Must be an awesome feeling so many sympathise with you :)

7 years ago
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Yeah, it's kind of everyone to wish me well. Feels like I am not battling alone with all the extra support. I can slowly make giveaways here, and they will definitely feel more important and like they have a purpose, which is a great thing. Glad I took your advice and waited. That allowed me to think deeper about this, and come to this decision ultimately instead.

7 years ago
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Bump

7 years ago
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They say we don't have Lyme disease here in Australia, but we certainly have a variant of it or something similar along with many other issues caused by ticks.

http://www.abc.net.au/catalyst/stories/4494187.htm
http://www.abc.net.au/catalyst/stories/4177191.htm

7 years ago
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My theory on a lot of the spreading: I wonder if possibly they hitched rides on birds? I'm guessing some might migrate there from other places where ticks are, and then ticks end up colonizing new areas in such a way. I have read about the huge protests in Australia, and a couple of doctors even being arrested there for trying to treat. It's a shame about the whole belief thing, but even if it wasn't lyme... if somebody is suffering, and nobody can find anything else it could be, then I don't understand why they should not have the option to try going the lyme disease route. I haven't looked at the stories yet, but I will here in just a few minutes.

With so much doubt even in areas with a bunch of ticks though, it's no wonder there is a huge amount of fighting over it in a place like Australia.

7 years ago
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Lyme disease is horrible. Thanks for raising awareness!

7 years ago
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Bump.

7 years ago
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I had no idea a tick bite could cause such a disastrous disease! Thanks for sharing this with us, and I truly wish you good luck in your fight against lyme and most especially a bad health care system (I've had my share of the latter, too).

7 years ago
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Yeah... It's too bad those who should be looking out for us the most end up cutting corners, or not caring, or giving out bad diagnoses, etc. It's very strange that many doctors I see push antidepressants at me, and NSAIDs, which cause death, but in the US, many of the pain medications are controlled substances. These can cause addiction, but you can come off of addiction and it won't kill you. They label addiction as worse. It is being quoted over and over as being "dangerous", but only people who overdose, or mix with alcohol or other dangerous substances actually die from them. Meanwhile thousands of people die each year from NSAIDs. It's very strange the way the double-standard happens. That's been my experience with the whole controlled substances thing, since I need pain and anxiety relief due to my illnesses.

Hopefully we are moving in the right direction, and things will start to turn around at some point. There is nobody to hold accountable for all this, and that's a huge problem too. Corporations with no actual "identity" are now running everything in the capitalist USA. I am sure I will start to improve with time. It took me a long time to get this way, so it'll take some time to get better.

I will probably go back to physical therapy again once I feel somewhat better. I was told to drop out for now, since I wasn't improving. But, down the line when I'm doing better, I'll try again. The thing is, the therapist wanted to continue working with me, but again it's insurance. They want to see results... So, they have to let people go if there is no improvement. Next try I'll make some improvement. I really like the physical therapist a lot! Great personality and very kind.

7 years ago
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It’s very sad how much chronic Lyme Disease is covered up in the U.S. Almost every doctor does not believe in the existence of chronic Lyme. I have had Lyme disease since I was born and started to have severe symptoms two years ago. I never thought that the pain I was feeling in my joints and bones was unusual. At times when I was in really bad condition, I thought the body aches, fatigue, and mental inability to focus was all in my head. I would tell myself that I was faking the sickness and would attempt to do something productive, never to any accomplishment. I was very luckily diagnosed about a year later by a naturopath who used the Western Blot test and looked at the raw data rather than not positive result I would have been diagnosed with according to the CDC’s guidelines. I recently found this video about someone’s theory on why Lyme disease is covered up. Link

I currently am not on antibiotics due to the damage they can do to your gut. I am taking Crypto-Plus and BLT instead. They kill Lyme and other bacteria and I would highly recommend talking to your doctor about using them. You should energy or have someone help you muscle test you to see how much you body can handle and slowly increase your dosage by a drop every day or two unless you feel worse. I also recommend taking Epson Salt baths as they help your body detox and can greatly reduce the pain of your body aches.

In addition, I recommend looking at different Lyme Disease summits as they can contain very useful information. Here is one to help you get started. According to the information I have read, you should never pull the tick out and should instead rotate the tick counter-clockwise or move your finger counter-clockwise around the tick. This causes the tick to back out on its own and there is no chance that the tick’s mouth parts embedded in your skin.

I hope you find this useful and maybe add some of the information or a link to this comment in the main post to hopefully help others with Lyme Disease. If anyone has any questions about Lyme Disease I would be happy to attempt to answer them.

Also a giveaway to add to the thread.

7 years ago
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I am sorry to hear that you have had it all of your life. It's a really rough thing for anyone to go through. I also can identify with your aches and strange sensations of bone pain and things like that... I'm always sore, like feeling this urge as though I need to stretch, but stretching doesn't help. Sometimes I can hurt the muscles by over-stretching, so I have to be careful, with the myofascial pain I have. The mental stuff was really bad for me once I got into my later teens. I finished high school a year early, but after a few years off, and trying college, all the sudden I couldn't do anything at all. Stuff that I used to remember easily with a photographic memory... it just wasn't working anymore, and I'd always forget everything, not just school stuff. It's so odd how the brain fog and other memory stuff can be sometimes. I have some seizure disorders on top of that, so some days I wake up feeling this odd electrical feeling, and others I feel like I cannot wake up the entire day nearly. I feel more energy at night too, for some reason...

Yeah - I had the same issue with the antibiotics, after taking the oral ones for a while. I had to stop my initial rounds of two high doses at the same time... I did okay on my second round of another with pulsing, but I waited probably at least six months before trying any again. She took me off when another disorder was found in my body to see how much I could improve before possibly trying again. I have to discuss that next time I go, since I've been on my new treatment for a while.

That is interesting about the tick and moving it counter-clockwise. There is no chance of it getting upset and sending germs into you before it backs away? I have heard it was not a good way to remove them, but maybe that has to do with twisting them and pulling them out before they come out on their own. I am also familiar with a lot of the speakers on the summit page. There are some really good doctors in there.

I haven't looked at the link about hiding the lyme, but I have read a lot into some of the theories with the military, big pharma, and places like Plum Island, Insel Reims, and others that would carry out germ warfare experiments to pacify people so they are easier to defeat in wars. That was what they were going for with the original Brucella, and they moved to other germs, since it was awkward to use in bombing runs, and it killed stuff too easily, instead of causing suffering and fatigue. They didn't want people dead, since they could still use weakened people after taking over their lands. There was a lot more than that, and later one there were a lot of other military cover-ups here and some good books on them. I'll probably look at the video though when I have some time.

Thanks for your giveaway contribution to the discussion here, and I will add it in right now.

7 years ago
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The higher energy at night is most likely your adrenals being over work during the day. That used to happen to me when I was worse, I would be unable to anything but when It became around 5 pm I would feel quite a bit better. I would ask your doctor about an adrenal support which should contain Rhodiola or Ashwagandha. The adrenal support should increase the energy you have during the day, but it may take a while. Here is an article and a video on using a tool for removing ticks and the tool is more efficient than moving your finger around the tick. You could make one out of a spoon which will be better than your finger if you made it right. I also recommend listening to some of the podcasts located here. I hope some of your symptoms start to lose some of their severity or disappear soon!

7 years ago
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Yeah, my nephrologist (kidney doc) recommended I try some adrenal supplements to maybe help my energy. They didn't find adrenal fatigue when they tested me, but he said it could definitely help, all the same.

I've been the same way. No matter when I wake up, whether at 5 am or 2 pm, I feel better as the sun is setting (around 5 - 8 pm, depending on time of year). I have taken Rhodiola and Ashwagandha, and I think they're great herbals with multiple benefits! I might try to find some quality ones again (I like the tinctures, but buying leaves in bulk is a lot cheaper in the long run, usually). Some of them I can use for teas, or infusions and the like. It's awesome how many great herbs are out there that might be helpful.

7 years ago
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Where I live it's a more seldom disease as are tick bites, but there have been stories in the news about people who got very sick or died because the tick wasn't properly removed..
Didn't read every detail, more of a résumé kind of scan. Not in a good psychological state to absorb all of it.
Here a jolt though..

7 years ago
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7 years ago
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Wow, that is pretty scary!

7 years ago
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Thanks a lot! It can cause some crazy problems - very random too depending on the person, and where it goes once it's in the body, or which coinfections it may have along with the lyme. I appreciate it much!

7 years ago
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7 years ago
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I think they're the ones who helped create this monster, after a few crazy reads! Lyme's been around for a long time, but it got really really bad suddenly since the 80's, when there were not really any horrific cases like there are today. Won't go into much of it, but there were facilities that were working on germ warfare in different spots in the world, and they used ticks in a lot of their experiments since they could be a vector to transfer various germs back and forth to animals.

7 years ago
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Thanks for sharing your experience.

7 years ago
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Thanks for reading!

7 years ago
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7 years ago
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Yeah... I agree - it's like a band-aid to cover up a lot of things, the medications. I have to find the best options I can until there is something better, but I do wish I could lower them. Another reason I take a lot of medication is that it "looks good" for my disability claim. It's funny that they will determine you are sicker because you are on more medications, but it seems to be a big factor, from what I have heard. Next December I have a hearing though, so maybe I can start to cut down on some of them. There are new rules with the scheduled ones here, so I would have to wait hours at my doctor's office to get a prescription every month, when it used to be three months at a time. I have decided to taper off the medicine rather than go through that each month in pain.

I have herbal alternatives that are both better and stronger on pain, and I can set my own dosage. Only drawback is being careful not to get too dependent on it, so I try to only take it a few times a week at the most, and have more off days than on days.

7 years ago
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Bump

7 years ago
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Closed 5 years ago by Zomby.