October 1st is National Day of the People's Republic of China, which is an excellent time to make a train. But because I don't really have much more to say about National Day I figured I might as well take this opportunity to share a little cautionary tale.

But first let's get the important part out of the way, the entrance to the train is right here
Level 4+, all bundled.
I promise there are no hidden links in the text wall below, so you can safely skip it if you don't want to read it.
ENDED


I may regret posting this, but here it goes anyway.
This is the brief story of my two tumors and how I failed to care for myself.

I officially started my battle with this matter in 2013 and everything seemed to be moving smoothly for a while. I visited several doctors and had plenty of tests; everything you'd really expect while on waiting list for surgery in this sort of matter. It was early 2014 when I got the exact date for my surgery and was looking forward to it. I arrived at the hospital on time, changed into that fashionable hospital attire and even got premeds before a surgeon came to me with the information that they wouldn't be doing the surgery that day; something was wrong with the paperwork. Feeling confused I simply left the hospital and expected the matter to be solved in matter of couple weeks. It was the next week when I learned from a different doctor that it was not that simple and would take longer because I had been placed back at the end of the line – they treated the incident like I had canceled the surgery time myself.

This was where my visits to the hospital increased as you'd expect, having to hop around a lot and keep increasing the amount of bills I got from it. It was exhausting and it was confusing, but in December 2014 I learned that I should be getting an invitation to surgery again. Optimistic again, I waited. And I waited. I waited and I trusted, but finally in September 2015 I was convinced to call and ask about it; turned out due to a mistake I had been taken out of the list completely.

The same waiting continued and when I received a special letter in March 2016 I thought that was it finally. Turned out to be just another examination and that the doctor examining me then was only putting me on the waiting list after the examination. Exhausted with the way things were going, I made an appointment with a very expensive specialist, who noted that the doctor who had sent me home just couple hours before surgery had been guilty of malpractice. Figures.

During the summer I received an invitation to surgery. Of course it came during a time when almost everyone had their summer vacations, making it inconvenient to call and make sure all papers were in order. When I finally got the right person on the phone, the nurse I talked to promised to discuss it with the doctor and make sure. They were supposed to send me something to sign, so I waited. I waited a week and I waited two, still nothing. I decided to call again and the nurse claimed she hadn't had time to talk to the doctor. I requested the information where I could directly reach the doctor, but she insisted that it “wouldn't be a good idea” and again promised to talk to the doctor and then call me back when she had. I agreed to it but told her that I'd be calling again if I received no word from them during the same week; the nurse called me back 30 minutes later. Somehow she had not found the time in two weeks to talk to the doctor, but when prompted she found the time within the next 30 minutes. I received the papers, everything was in order.

1st of September I was on my way to the hospital when I got a sinking feeling. I was only a short distance away from the hospital when my phone rang, it was unlisted number but I had no time to answer it before it was disconnected. When I checked in, I got another bad feeling because the receptionist didn't ask me the usual questions and simply told me to wait until someone would come talk to me. Soon enough another nurse came to me, smiling politely as she told me that she had tried to call me and let me know that my surgeon had fallen ill, meaning my surgery would have to be postponed.

Finished with this sort of behavior from them, I told the nurse I would not be leaving before I had talked to a doctor who'd explain the situation to me and I'd want the right to record the discussion. I also mentioned a lot of other things (a lawyer and the previous sending me home incident, for example, I just went off completely) and the nurse agreed she'd let someone know these were my wishes. So I sat back down, in complete shock over what was happening again but determined to fight; 20 minutes later the nurse returned and said surgery would happen as planned. It turned out my surgeon wasn't sick, but some other doctor was and they were trying to lessen the workload by rescheduling people; basically the nurse had lied by claiming my surgeon was sick and because I wasn't a terminal case, I was instantly on their rescheduling list. After this point everything went as it should've, even though I didn't really believe it until I woke up after surgery. My journey isn't over yet but from now on I won't be as trusting.

My point here is not to attack any doctors or nurses personally as people, but to encourage people not to be as lenient as I was when it comes to their medical care. You are the one who cares about your health, not medical professionals, they are simply doing their jobs. Make the calls to ask things and make sure they won't slip you under their radar, it's in your hands to make sure you get treated like you should.

7 years ago*

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Are you going to comment something rude?

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You bet I am
Why would I do that?
I'm hungry

Very nice train. Thanks.

7 years ago
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7 years ago
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I thought "it's not 29th April... why golden week?"
Oh... It's not Japan's, it's China's xD

Sometimes when you count on them.. They just stab you in the back
I think I know why people hire their own private doctor

I hope the tumors are removed completely.. Mind if I ask?
How did you discover them? Medical checkup? or you feel something hurt inside your body?
Well, they say tumors are wild and like to hurt people.. While cancer is obedient child that will stab your back soon xD

View attached image.
7 years ago
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Oh that's right, I completely forgot Japan has it too!

Honestly, I'd also hire a private doctor if I could afford it. Would certainly make life a little bit easier.

For the moment it looks like they are, but I'll have to go in later for additional check-ups to make sure. I originally noticed that there was something abnormal on me long before I went to the doctor, thinking it was just some muscle pain and that I could deal with it. Eventually it just got worse enough for me to actually get a medical opinion on it.

Btw, your lists on MAL look absolutely fantastic!

7 years ago
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Yeah not everyone have money to hire one
The easier way is either if they're your sibling, cousin, or your best friend... But that's not that easy too xD

Can I know where are those 2 tumors at?
Hmm.. At least it's a good thing you can notice them early before it got worse

Thank you for your kind words ^^
Even though those lists aren't my work xD

7 years ago
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Wow - which country are you talking about? Oh, nevermind, I assume China from your train.

By the way, wow - thanks for such a great train!

7 years ago*
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Best of luck going forward for you. And thanks for the train!

7 years ago
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I can't imagine how did you manage to stay calm for years...
Happy holidays and stay strong!

7 years ago
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Take good care of yourself.

7 years ago
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Thank you, will try. :)

7 years ago
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Damn.. Hope you're doing better now.

Thanks for the golden train!

7 years ago
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Thank you, and my pleasure! :D

7 years ago
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Sadly even health is used as business. Differs from country to country but there are cases where people get shafted for profit of some kind.
Does China have healthcare paid by taxes or by paying to corporations? Or am I completely wrong on assuming you reside in China. xD

7 years ago
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Hmm, healthcare in China is actually pretty interesting matter at the moment. Almost everyone in China has health insurance, but it normally covers about 50% of the costs or less, depending on your issue (the percentage that the insurance covers is significantly lower for chronic pain patients, for example). Currently efforts are being made to lower healthcare costs on a nationwide scale and initiative calling for insurances to cover more costs, with the idea that all this would be achieved by the year 2020. It's interesting to see if this can truly be achieved!

7 years ago
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I really sorry that you had to go through something like that, and for so long too. You're a strong person, I'd be so incredibly frustrated (probably even beyond so) if something like that happened to me ;n; I hope you have nothing but good experiences from here on out <3

7 years ago
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Thank you. :) There were more than few times when I was either frustrated or just downright hopeless over the situation, but hopefully that's all in the past now.

7 years ago
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bump ~

7 years ago
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bump:3

7 years ago
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before last week, i would have gone into a tirade tearing the medical industry a new one.
long story (hopefully) short: i have chronic pain and was prescribed a controlled substance to manage it. i let my doctor know what i thought of the whole system when my bill increased not insignificantly and was fired. finally got in to see another doctor, told him what happened with former. new doctor laughed his ass off and gladly accepted me as a patient.
good doctors are out there, but, as a whole, fuck the system, because it is just that: a byzantine labyrinth of red tape.
i wish you a speedy and effective recovery.

"You are the one who cares about your health, not medical professionals, they are simply doing their jobs."
i love it.

7 years ago
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Agreed, it's a really tough labyrinth to navigate. Good to hear that you found a better doctor for yourself, hopefully everything everything goes well with him! And thank you for the well wishes. :)

7 years ago
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it's just amazing to me that, because of that quote i borrowed from you. doctors have to have a warped perception of their patients, else they'd go crazy; patients aren't people so much as individual "cases," stats and paperwork rather than beings with feelings...
not to demonize them, only to further reinforce how necessary it is for the patients to not put blind trust in them.

very interesting about National Day of the Republic of China btw, i've never known about such a celebration lasting for so long xD

7 years ago
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I remember someone once talking about how people working in medicine "have" to have that sort of outlook where patients are cases instead of fellow people, or else they'd break under pressure and wouldn't be able to do their jobs for very long. It makes sense when you look at it that way, but it's not something you usually think about so that's even more why I (now) think it's important to encourage people to remember they themselves are the first person who cares about their health and not someone who is paid for it.

7 years ago
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Sorry you had to go through such a terrible experience. Waiting 2 years is ridiculous. I'd be thinking of filing a lawsuit if that happened to me. Hope your health is improving.

7 years ago
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Ugh... PS was this in the US? What kind of surgery was it?

7 years ago
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7 years ago
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Funny enough, often the bills are the worst part about hospitals! If not counting blatant mistreatment, of course.

7 years ago
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bump

7 years ago
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I'm happy that you were finally able to get the surgery that you had needed so much earlier, but angry at the doctors and nurses that gave you so many run-arounds. It's a shame they treated their patients less like numbers and more like fellow human beings, but I'm not sure if that will ever be in the cards.

Now that I have read your post, I will check out your train. Thank you for that.:)

7 years ago
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Indeed it is a shame, will just have to wait and see if it could ever change.

My pleasure! Hopefully you found something worth entering. :)

7 years ago
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Good luck with your health. The rest of the difficulties are secondary, but well done for fighting on them

7 years ago
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Thank you. I was a bit bitter that I didn't fight sooner but there's nothing to be done about that.

7 years ago
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Wow, I'm glad you decided to make sure you get the surgery rather than allow them to mess with you. I hope you get better and everything works out well.

7 years ago
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Thank you, I sure hope this was the last time I had to deal with something like this.

7 years ago
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Wow
You are right to understand that they are only doing their job.
i hope you cure and recover.

7 years ago
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Thank you. :)

7 years ago
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Bump

7 years ago
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ヽ( ̄д ̄;)ノ

7 years ago
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Sorry to hear about your struggles and hope you're doing better now after receiving the surgery.
I can understand where you're coming from since my mother's incident. She received surgery after a car accident only to have her condition go downhill without dr's knowing why so they ran tests and finally an x-ray shown that they have left a metal clamp inside her chest cavity. I was livid when i heard what had happened however myself being in hospital having just gone through labor, i couldn't be by her side. My dad drove to be with her (she had the accident on the way to a fishing trip with her sisters so she was 5hrs away from where we live so was taken to the nearest hospital there) and both my parents not knowing English very well got duped into signing away any rights to sue the hospital, they were told those papers were needed to be sign or my mom's surgery (to take that metal clamp they forgot out) wouldn't go through, however in reality what they signed were papers releasing the hospital of any fault and not to pursue any action through the courts. Thankfully she recovered & as soon as i was out of hospital myself i arranged for her to be transported to a private hospital near home where we could care for her & had more caring doctors. So my advice always read everything you're signing and don't be pressured, if you don't understand then get a translator or someone to explain everything to you.
Also thanks for the train ;)

7 years ago
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Thank you.
That's terrible what they did with your mother! They knew your parents could've won that case and took advantage of them not understanding English very well to save the hospital's ass. Of course in a worrying situation like that you just want the problem fixed, and it's good to hear your mother recovered. Hopefully nothing like that will ever again come your family's way! That's also very good advice, it's best to read the small print.

7 years ago
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Golden Bump ^_^
Thanks for the ride (:

7 years ago
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Closed 7 years ago by Noxco.