Robotex

Description

Ok so to keep going to make known my invisible illness, I give someone a little game (we do with what we had ;) )

May is the month for Ehlers Danlos Syndrome, make it visible !!

Another giveaway when this one finish ;)

I've got Ehlers-Danlos Syndrome and I want to make it visible to everyone ::

I've created a discussion here : http://www.steamgifts.com/discussion/L2q5O/giveaway-with-a-few-life-on

Feel free to spread the world and make every one aware of this illness, the more people known about it, the less doctors said "You're just crazy, it's in your head !! "

Thanks a lot and Good luck to everyone !!

A link to wikipedia to know more : http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome (share it on facebook, twitter, instagram, etc... )

EDIT :

A winner is going to get is game ;)

Added him on steam waiting for reply ;)

thanks all ;)

Sent, but no return... or he took it ... weird, i'll wait but i'm not optimitic :(

12 Comments

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This comment was deleted 5 years ago.

8 years ago

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PhilCR

Thank you, man.
It's a real bummer not having a cure for it; good luck on your treatment.

Just for curiosity: have you been misdiagnosed?

8 years ago

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Flepi

I'm not a man ;)

Thanks to you ;)

Misdiagnosed... hum yes "it's in your head", and fibromyalgia, and multiple sclerosis, marfan, maybe chron and others diseases who take a few part of the entire problems I've got...
Diagnostic ended at 33 years old... but i've got problems since I was a child ^^ so during long years, nobody nows what i've got ^^' and it's the same for a lot of people :/
And I try to forget the doctors who looks at me and said "Ok how did you REALLY blocked your back? really? cause bring a sweater isn't possible !! tell me the truth or I can't treat you !"... and in fact I was only bring my sweater... only this and my shoulder block in my back... simply as it ;) (i've got tonns of this ^^' )

Have a great day ;)

8 years ago

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Segnordiablo

thx

8 years ago

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Goha28

Thank You for the opportunity! Have a nice day!

8 years ago

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Flepi

Thanks, you too ;)

8 years ago

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euroboardgames

Wow, miss. That was quite informative of this EDS disorder. May you find some measure of contentment amidst this affliction. (I would heal you myself--but my powers have a very long cooldown.)

8 years ago

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Flepi

No problem, I deal with it, keep you powers to something usefull like hum... stoping an hurricane ;)

Have an awesome day !!

8 years ago

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tuandat3019

Thanks You So Much , i like this game ^^

8 years ago