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I just lost my job.
I've worked there for 6 years. Had a seizure. My colleagues were scared. To the point that they actually told my boss to boot me out so that they'll never have to experience that again. I can kinda understand.
And no, I won't share where I've worked to avoid people giving them negative reviews on Google or something.
But yeah, I loved that job. And my colleagues.
I've never felt so bad before. My job is gone, my colleagues are gone, everything.
So why am I creating this thread? Well idk. I think I simply need someone to talk to. I feel so lonely right now..
Of course there's a GA for you tho
Thanks for reading
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I'm pretty sure that's illegal. Unless you are working with some dangerous equipment that could result in injury or death if you had a seisure around it, they absolutely have no right to fire you. There is nothing understandable about this. It's discrimination, pure and simple.
One of my immediate family has epilepsy too, so I understand quite a bit about it.
It is. But what should I do? I don't think I would gain anything by sueing them. I am just really disappointed and sad right now.
First link when I researched "unfair dismissal"in your country. So basically, you need to consult with a lawyer. You likely have a good case here to be compensated.
Sure, I could sue them. But what for? Money?
I don't care about that. I just wanna work.
Yes. But you are now without a job and have lost your income. By the sounds of it, you won't be able to go back.
One has to remember that your employer is never your friend. I've had nice employers and asshole employers, but the nice ones were not friends. At the end of the day, they want to get as much work out of you as possible for as little as possible. That's the way the world works.
By suing them, not only do you get some kind of compensation for the time you have to spend looking for another job, but you prevent it from happening to someone else.
It's up to you though.
Hmmm. I'll have to consider it, you are correct. Thanks for taking your time to reply.
Indeed! Well said!
Nothing will fix this but.. maybe an artichoke heart will help? :P
insert artichoke heart
Dand it, it's so funny.. Artichoke xD
Normally I would laugh at this as I love these..
Thanks for trying to mood me up
But above all, don't lose hope. You can find another job with people and maybe it's gonna be better than the previous one. You hit a road block but not the end of the road!
Thank you, cigarette brand
Always remember no one is lonely our creator(u can call him with any name in different religion) is always with us and watching over us. So never feel lonely enjoy your loneliness because there will be a time u will be preoccupied with your work and u will think about spending time alone away from the crowd.
Hey sorry to hear what happened. None of this is your fault, so please remember that. Those coworkers of your are terrible people. That shouldn't have even cross their mind. When someone is in trouble, whether it is mental, physical or health wise, you look to try them and offer assistance. Not throw them out. I don't know where you are located but you should talk to a lawyer. I think there should be law in the workforce for that. And no, do not understand their reasoning for throwing you out. That is something terrible they did and don't even try to defend them. If after what happened and you can't perform your job. Sure then you talk to management but people don't go rooting for you to lose your job. You own this job no loyalty if they are going to treat you like that. It would mean that all your co-workers, management and the company itself will do that to anyone else. And you wouldn't want that to happen to anyone else. So yea, talk to a legal expert and bring this forward so no one else can get the same treatment that you did. If you ever need to talk more or just vent or want to express your feeling. Feel free to talk to me. Otherwise, I do hope this incident won't happen again and you can find a new and better job. Where you are surrounded by a better company and co-workers.
Thank you for your kind words, Cobra
you're welcome. Keep your head up and things will get better.
When I was fourteen, I witnessed my older brother have his first seizure. It came completely out of nowhere. Yes, it was scary for me, but it was surely nothing compared to what he went through afterward, dealing with his thoughts and feelings and worries about the future. You have my sympathy. And to be clear, it takes a special kind of heartless to cancel somebody who is going through that. Like others here, I would encourage you to seek legal representation. Good luck.
Thank you Charles. I'm sorry your brother had to go through that.
I'm sorry to hear this, friend
Sometimes it happened because you deserve(and will!) find a better job at a better place where people would understand what has happened, that it wasn't your fault and nobody can control such things
Maybe it was for the best that you had a seizure yet you're on good health, and have the opportunity of diagnosing it better?
Maybe looking back to this situation in a year or two you'll be at a much better place? Godspeed, mate
Thanks dude, it means a lot to me
It is a sad story that you are not understood by your workplace.
I think it is OK to work with epilepsy as long as you tell people about it in advance.
However, there was one person with epilepsy who hid it from me and others beforehand.
I have had it suddenly turn over in my office.
Fortunately, I knew what to do to secure the airway, so I adjusted his posture and protected his tongue with a handkerchief to prevent it from being bitten off, and an ambulance came and retrieved him, and I was later told what happened.
This happened when I came in having forgotten the medicine I always take.
It was a story like that.
The person who turned over was understood by those around him and continued to work at the same place for a long time afterward.
But the person said one more thing.
He was afraid that having "epilepsy" would prevent him from working.
Perhaps something to think about when looking for a new job.
I am sure there is support available in your country, but it is hard to do anything if you are living with something "hidden" (something you want to say but find it hard to say).
If you can, try to find a place where you can talk with others who have the same problems. You may gain some helpful insights.
I hope your next workplace will be more understanding.
I have attached a list of information that I have found that might be of interest to you if your nationality is German.
Unfortunately, I am off the planet, so I cannot vouch for the accuracy of this content, unfortunately.
Deutsche Epilepsievereinigung – Gemeinsam leben mit Epilepsie
Informations-Pool – Deutsche Epilepsievereinigung
... I just imagined a working place full of people with the same problem. And then it happened...
Well, there were about two people close to me in my life who either hid it or didn't.
I may be a timid alien, so I was proficient in dealing with lifesaving and first aid for humans.
It is the worst feeling to be told that humanity has abandoned you....🙄
I have met people who say it for cowardly purposes and people who say it in the same helpless state.
In any case, we do "what we can do for good" when we can.
Repeating later words and deeds of regret for what we don't do will not bore us for 4/50 years, so game time will be greatly impaired.🤦♂😫
Today, the space translator is still a bit dubious, but, well, strangely enough, I tend to be at the scene of trouble....
Perhaps I am still in the center of the vortex.
But what I am not aware of may be what is needed for peace on earth.
Because tomorrow will probably be a better day if you work on reducing the number of worries rather than increasing them.🙄
Thank you for taking care of that person.
Sorry to hear that mate.. that feels like wrongful termination alright. You can at least ask a lawyer about this and see where it goes from there (better call saul.. jk)
Don't lose hope, you'll get better, and find a more supportive workplace for sure :)
Considering it is illegal, are you sure you haven't been fired for also something else? Like discriminating opinions?
oh wow lol.
Oh man I feel bad about this.
Yes. I've been an asshole before. I am sorry.
Wow. That's terribly ignorant.
Whoa. Yeah, it's possible everyone's been uncomfortable working with OP for years, and this was just the impetus to have a show of hands.
Don't you guys have some laws for protection against things like this? I know, it might seem pointless, but at least worth a shot. And f*ck those co workers of yours.
Don't really get the boss as well. Doesn't seem logical conclusion. Specially if you were performing well.
My boss actually told me that I did a good job often.
This makes it so much harder.
Your colleagues were pieces of shit then.
But I actually liked them..
Sue the fuck out of them, I'm pretty sure that's illegal.
Fuck those fake colleagues more like asshole betrayers.
idk I really liked them you know?
Why would they turn their backs on me?
that really really sucks.
sure, fight it if you can but sadly it can't take away the experience of going through this... Hopefully this all leads to something better in the end.
all the best man!
So saddened to hear (another example of) how "little" people can be. It is difficult enough suffering with some hardship without having people who do not have such a hardship shunning, despising, being uncaring and making life even more difficult for someone who more than anything else needs love and understanding. 😢
At least I live in Germany and I can get help. Others have it harder I think.
Man, that's too cruel. I hope you can find a job you like that won't boot you for something out of your control.
25 (or so) years ago, I went on meds for this. The meds then caused weight gain, hair loss, and reduced cognitive function. (Hopefully there are better meds these days?) I was lucky -- I only had minor motors, my dosage was low, I knew my triggers, I could recognize the aura and often stop before having a seizure, and in time I could get weaned off the meds and live seizure free. My two sisters are not so lucky -- grand mals and persistent higher dosages for them.
I wish you the best in living with and managing this. I hope you have good, in-person relationships with people who are supportive, unlike those callous co-workers.
Thanks for sharing your experience. Sadly my medication is bitter on my body. But I think I can manage somehow.
Aren't there operations for it?
There is. But they actually do surgery on your brain. Wouldn't you be scared as well?
Yeah, but a seizure too to be honest, but i never had to experience that.
But i had an old uncle (by divorce) that got surgery done and that seemed to go well for him.
I am active on an epilepsy subreddit on Reddit and people posted pics of surgery and they are hella scary.
Yeah last thing you should do (but with any disease, weird spots on your body etc..) is to look at such pictures on the internet.
When you would get surgery done you would be asleep (i assume) so not like you would notice anything from it. ;)
You don't live in a third world country (although we are starting to be one) but i can assume you got capable surgeons.
I went to college with a girl who had surgery for it. Was a course I did before starting uni, when I left school in 2002. She was actually one of the first people to go through it, so it was all paid for. She was getting 13-14 attacks a day. She said it had been several months since her surgery when I met her and she didn't have an attack in the entire year that she was in my class.
It can absolutely work, but there are huge risks involved. That classmate said her life wasn't worth living and with 13-14 seizures a day, she wouldn't have survived long anyway. It gave her a normal life.
Yeah that's like 1 every 90 minutes, must have been awful, glad it worked for her though.
In essence any operation can always give complications and risks. (Like my mom had eye surgery which may or may not have caused her to have a light stroke 2 weeks later) but i can imagine surgery on the brains is even riskier. I am sure such decision must be a very big one.
Yeah, she told me that doctors told her she had a 50/50 chance of surviving the surgery. She said she had no quality of life anyway, so there was no real decision. That's the way she looked at it, and I suppose it was a good attitude for her to have. She wanted a quality of life.
I know all about complications, unfortunately. I had back surgery in 2019 and had an awful time afterwards.Surgery was a "complete success" until 5 days later, I got a pain in the back of my head, then the front. Then I had to lie down and couldn't sit back up. When they put me sitting up, I vomited and screamed in pain. I had a CSF leak that caused a large pseudomeningocele (lump) on my back. The pain in my head was something else. I do not wish that on my worst enemy. Took 4 months for the lump to reabsorb. Now my back isn't as good as I would like because of what happened, but I guess it was a lot worse before the surgery.
50/50 That's tricky, and i can understand if OP has it like maybe once every few months, then his decisions are on a whole nother ground.
Yeah alas life doesn't come with (pain free) guarantees or without it's ailments.
Yes, I think in my classmates case, hers really wasn't a decision. It was the only chance she had.
If you're not getting it often and it's not immediately life threatening, then it might be something you decide to just live with.
So sorry to hear that! My eldest son is an epileptic, and honestly stories like this make me worry about his life when he's grown up. I know it's scary watching someone have a seizure, but you'd think by now people would be more able to accept that it's no fault of your own and treat you with a little kindness. It's sad that in a world we're expected to treat everyone with respect over things they choose to do, many can't find a bit of kindness for those who have things they genuinely can't control. I really hope you find something to do where you are valued and respected.
Please please please give him all the love you have. Us epileptics need an extra bit of attention since we are mostly unable to do normal life. Thanks.
Yeah we really try. It's tough seeing your own kid struggling and not being able to fix it. We've been through the stages of various medications with him, and dark periods where he seemed to be losing his personality. Thankfully the meds are helping him at the moment, but it's still a cat and mouse game and you're forever wondering if a look in his eye was just a stare, or if there's something going on. And I've seen what the seizures can do so I can only imagine what it must be like dealing with that. So you have my deepest respect and sympathy.
Kids in school should spend more time learning about epilepsy and other real life things people deal with, just so they don't grow up with the sort of prejudice you've had to deal with. And maybe even learn how to help someone having a seizure, instead of freaking out.
You really seem to put a lot into that matter. Thank you for this! And also thank you for taking your time to write all that.
thank you for being supportive parents, give him a hug from me, so he knows he's not alone, if you would please
I got concussed from knocking some sense into me and called a strawhead instead
so I thought I just had blonde moments and days, with the odd fainting spell or narcolepsy, until diagnosed at 45
I'm on max dosage of Valporate and Baclofen, which only reduces severity and frequency for me
I wish you well in helping him to cope
Wow I see what you wrote there below as well. Sorry that you have had such a horrible time! Are you able to drive?
My son mostly has the same kind as you, with the 'staring episodes' and at the worst times, the EEG has shown a spike every second or two. But he has also had grande mal seizures, and half of those were only stopped by sedation in the emergency room. That was when we first had solid proof he wasn't like other kids, when he was 3 years old and we woke up to him completely 'checked out', and we don't even know how long it went on for, but he only stopped after the doctor knocked him out. That was 10 years ago. Each time between the sedation and seizure it takes at least a day for him to recover. He is also on valproate and also topiramate (which is not always the first choice but has milder side effects then the Lamictin he was on and still seems to work).
But yeah, I really wish epilepsy education was given priority, just so people know how to help. There shouldn't be a stigma attached to it. Ou
took myself off the road at 30, when I started suddenly waking up whilst driving
wasn't diagnosed until 45, when narcolepsy was finally ruled out
pennies started dropping as I looked back on my life, it explained a hell of a lot that happened, which gave me closures
before meds, I'd go statue, all 5 senses gone, for hours and continue typing mid-sentence, completely unaware of it
the other 2 meds you mentioned don't mix well with my 20/day cocktail, getting all teeth pulled next month due to side effects :D
btw, medical cannabis does help and can't get stoned or addicted to it
I've learned to just laugh at all my medical problems, when they're not painful ;)
some cult(ure)s deem mals a manifestation of divine spirits, where those without are pitied or snubbed
the stigma stems from those that believe(d) them to be contagious or daemonic possessions
us weirdos were sooths, shamans, seers, mysteries and oracles to the Ancients
The docs have mentioned medical cannabis as another option if the current meds lose their effectiveness. If it works then why not.
Yeah i think humanity has a pretty dark history when it comes to treatment of mental conditions. Just glad they don't drill into skulls any more to let the demons out.
I feel for ya, I've lost jobs, GFs, friends and my family still freaks out, from petite mal blackouts / time slips
usually freeze like a statue, unaware it's happened, like the blink of an eye to me
if come to on the ground, I'm completely disorientated and it feels like I've been hit by a truck for about an hour
almost sent to ICU, when awoke in a pool of sweat, unresponsive to pain tests from Sleep Paralysis, until a doc noticed mal twitches and they IV'd Valporate
from what I overheard, the entire ward poured into my room, in a state of panic, with crash cart in tow, my body got revenge for a suprise painfully enforced enema earlier :D
never had a grande mal, so can't even imagine what you must go through, I'm told they can be felt arising days to weeks prior, not suddenly like mine
I often get a couple minutes warning, before suddenly falling asleep for 2-30+ hours, my bladder kinda gripes about that a bit, triggering sciatic leg cramps, should I dare move a toe
not worth the red tape to get your job back, how treated when return, and they'll find, create or set you up for other reason(s) to dismiss again anyway
just lick your wounds and move on to a better life, they have a problem, not you, refuse to be thier victim any longer
my mals are stress triggered, not photosensitive, but darkness eases the migraines
I have grand mals regulalry.
It hurts. I bite my tongue, wake up with blue spots on my body. I piss myself. Need to wash my mattress cover ever so often.
And the worst is that I need to sleep for a long time before I can actually recover.
comradely hugs esteemed one, thank you for increased insight
you are braver and stronger, than those who mistreat, and they foolishly envy our sleeps
may you rise from the ashes of this workplace disaster, to shine your light brighter than before
multiple edits, including previous post, due to typo stuttering and brain farts atm lol
it is what it is, we do what we can do, always our best in the moment, human :)
I like your words. You say all the correct things. Thank you so much.
I've bit my tongue a number of times, thankfully only lost bladder control once.
My grand mal seizures are pretty sudden, I get at most 10 seconds warning. Bit my tongue a few times, but mostly after my hour or two 'nap' my muscles are just extremely sore.
oh, so grand warnings can vary even more wildly than my irl friends get, thanking you kindly for speaking up :)
seems we all get torn muscles from the ever so long severe cramps and spasms, reckon the brain needs REM to heal
I wear a pendant that calls an ambulance when I drop/fall, cuz always injured, often fractures, if not a concussion
keep well, stay safe and strong
Seriously?! What kind of pussy colleagues are they? After 6 years of working together, they've decided to boot you out instead of showing you support just because of a fucking seizure?!
Bro, you deserve better than those pathetic snowflakes. I'd say sue their ass and find a better job with people who can deal with things more maturely.
I mean they were colleagues and not close friends I guess? But I thought we'd be better together after all this time..
I don't speak German so I can't really help with the search but if I were you, I'd google to find an association that protects the rights of people with epilepsy, or disabilities in general, and I would shoot them an email to know what your best course of action is, as I'm sure you have many.
These organizations tend to be not for profit but they usually have access to databases of lawyers and other people who can help if not sue, at least arbitrate the situation with your employer to enforce your rights and get your job back.
I know someone here who was fired from a professional kitchen after having a seizure (he had traumatic brain injury after an accident) and he got some help from a European agency advocating for people with epilepsy and seizures. He couldn't get his job back because of work safety concerns and insurance issues but if you work retail and you have managed to work there 6 years without anyone even knowing you had epilepsy, I really don't think they can play the "work safety" card. It was discrimination, pure and simple.
Your co-workers being at ease or not with you is not a good reason to fire someone, whatever it is that makes them uneasy.
Thanks for your input. I will consider that. And I really mean it. In that I am thankful.
As a fellow epileptic, I'm very sorry to hear how they've treated you. For some reason It seems very hard for people to understand seizures, and they can treat you as an outcast. I've never been treated that badly though. I have been treated terribly due to anxiety disorder and depression, so I know how that feels.
I'm 'lucky' in that I get a warning aura of maybe 5 or 10 seconds, which is enough time to find a chair or bed or something. Mine are generalized grand mal seizures, so I end up taking an hour or two 'nap' afterwards.
Do you have decent meds? It took me a long time to find one that worked for me. A couple like depakote made my hair fall out, and I gained weight. Keppra interfered with my anxiety and made me feel like I was going to die. Finally found oxcarbazepine, and things are working great.
I hope you can find a decent job with decent people, and that your epilepsy is manageable.
I switched to Keppra once and that one made me wanna kill myself. Scary shit. We immediately switched back to Valproate and I am taking this still. It kinda works and I am too afraid to switch meds again.
Thanks for sharing, fellow epileptic. Maybe we could become friends on Steam? I wanna talk more with you.
I've heard that CBD oil really helps a lot with seizures, and there's scientific research to back up its efficacy. It's definitely something to look into IMHO...
Beware of the quality of CBD Oil, because mileage will very vary depending on where you get it from.
Also you got to put drops under your tongue which offcourse in a reflex will struggle back (i found it a hassle!).
I'm so sorry to hear that, that's utterly terrible. you don't have HR? or someone you can report to?
To fire someone like that, is being ableist in my opinion.
My mother suffers with epileptic tonic like seizures so I understand how painful it can be.
I did call HR but they actually told me off.
"Not my job to care about stuff like that" was basically what I heard.
Yeah, HR exists to protect the company from its employees. What you need is a lawyer.
Hello, I am so sorry for what you've been through.
I have an uncle who had epilepsy too so I kind of understand!
I can be your friend if you want to!!! Don't be lonely, lonely can literally lead you to do stupid things!
Go out, find a hobby, meet new people, your life will be much better!
I feel like there is a significant chunk of the story here that is missing
What do you want to know more about? If I can, I will share as much as I can.
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