... I'll never give up.. but... I'm sorry. T.T ...

I've been twenty years away from all I ever knew... to return would make my dream... come true.

I am no longer going to keep this PSA going. It violates steamgifts terms which state:

"When posting links or content, that content should not force users, encourage users through reward, or primarily exist as a traffic source for users to perform an action for promotional, commercial, or monetary benefit. Such actions include but are not limited to clicking a referral link, liking a Facebook page, following a Twitter account, joining a Steam group, completing a survey, or making a donation."

Currently, everything on steamgifts, including entering a giveaway, breaks this rule. Nobody would enter if it did not encourage users through reward. It's not guaranteed, but neither are any other types of things being flagged as "bad" vs "good".

If anybody wants to continue this thread/post, I will be more than happy to allow such a thing.

I will win. But. I can't do this... not right now. Please keep it alive in your hearts and minds - and spread awareness to others!
We are saving lives. This isn't a joke, or something fun. It's real. The horrors of lyme are real.
Never... never... never ever knew... this could happen to me or anybody else for that matter. Please. Be grateful for your own health.

Live your life strong... and do things I cannot do. Please live life for me - where I couldn't be strong enough... you can! You will succeed! Be that person I wanted to be. The person I would have been, had I not gotten sick... as one of the healthiest people around before a damn tick destroyed me... at least up to now. One moment in time. It destroyed it all...

Please never forget your health... and how important it is. We only have one life. Don't waste your chances!

Please send me a message through steam if you wish to keep this going!



A friend of mine, JerichoOfRivia mentioned a while back that I should create a post about this on Steamgifts. I sort of considered, but I didn't know if I wanted to go through with the effort. I've decided to incorporate lots of giveaways into this and try to keep it bumped here and there when I can, and I hope some people will consider doing the same. It's a rather touchy and important issue, and I didn't know really how much I wanted to go into it, or what I would say. Here's what sprung from my mind, so I hope it will get my main point across without being too much about me, but it will be mainly about me, since I am one of many suffering from this disease with no cure.

Some of you already know this, since I mention it in comments here and there, but I have lyme. I was bitten by many many ticks when I was 11 and 12 years old, during the time of some experimentation being done on mycoplasma germs about 30 miles away. I also coincidentally happen to have a very debilitating form of mycoplasma. I told doctors I was sick for many years after my body started to tell me it wasn't well, but they did not believe me. I got progressively worse as time went on, starting with neurological symptoms, progressing to nerve sensations and pain, and then overwhelming fatigue. I was told it was in my head, or that it was all due to depression. Some doctors told me I had growing pains when I was still fairly young, and others blamed it on lack of exercise. Why would they even say that, when the whole reason I was complaining is because I could not do the things I used to do?

I used to run close to five minute miles, but now I'm lucky if I can even make it upright for five minutes on my really bad and fatiguing days. Running and doing other active things outside was sort of my downfall. If I had stayed inside leading an inactive lifestyle, I wouldn't have had nearly as many chances to get bitten by ticks. I started to lose faith and trust in all doctors, since they kept ignoring me when I told them I was sick, and as all the medical professionals I saw gaslighted me into that belief, I eventually believed I was imagining it all, that it really was in my head, so I gave up for a long time. Certain things helped me over the years, and other things seemed to help, but also caused me other problems. I am surprised I lived through this, and that I continue to be as strong as I am. I might just be lucky, since it hasn't yet attacked the places where it can with others, causing death within months to a few years.

I have over twenty various conditions, most chronic and some fully systemic. Some I can slow progression by taking supplements and other things, and most have no permanent cures. Some will take constant medication, and some can be prevented to a degree, or at least masked to some extent. There have been times where I've taken over 60 pills a day. On average I'm probably about half that right now. It's very hard to live like this, and when I was healthy, I never imagined a person could feel this way, even on my worst days, or in my worst nightmares.

When somebody asks me what it is like, I explain that it is like a constant flu most of the time, but instead of being able to sleep through it as a sick person would, and having it go away in a few days, it never ends. On top of that, I have to perform and function in life while I have the flu, unlike the people that get a lot of rest. They get better. I cannot rest twenty-four hours a day, and it's pointless to do that, since my muscles would only atrophy, and it's too painful to sleep for very long periods most of the time anyway. I have a lot more symptoms constantly barraging me aside from a simple flu, but I describe it this way, since most people know what the flu is like. The other stuff is a bit more difficult to get into with somebody healthy.

I have learned a lot about living on the other side of healthy that I would never have known, had I been treated properly. I think this disease and many others it causes are ignored so much because of the fact that nobody believes you are so sick, and most minds cannot comprehend something so devastating without actually having experienced such a thing, so they have a natural form of denial about it. Many people with lyme can do things at times, so on the outside they look fine for short periods of time. Other times when nobody sees them, it may be a different story. Many times the recovery period for doing the seemingly slightest things can be quite harsh. Other times I do a lot more, and it doesn't hurt me later. Most of the time I don't notice the hurt, because I already am hurting worse all over. It's not something somebody can ever see, like a missing arm or leg, for instance. The neurological effects are the same. Mental health is a sad thing to examine in today's world. I have test results of some things showing problems, like seizure disorders, but not very much evidence, since the brain is so complex. Most tech is very new, and hard to get to without large amounts of money. I found a place to work on some of my neurological things, perhaps, but it's over two hours away. My insurance is ignored by most doctors in the area that could help because I am on government assistance since I can't work. It is a form of discrimination that is ignored by my government.

I have only some tests that can show much of anything. Lyme tests are not very accurate. Probably well over half the tests give false negatives. Some people have gotten 10+ tests showing they have zero lyme, and they "suddenly" end up with a positive one. Also, many people do not get the "bullseye rashes", possibly as low as ten to twenty percent. I never got one that I noticed, but after many tick bites, my body started acting crazy, and I had three breakouts of strep in a single month, with full body rashes at 11 or 12 years old. I have gotten 3 or 4 lyme tests so far that are equivocal, and as close as you can be without an actually considered a positive result. I am probably too far into late stage lyme to get a pure positive result, since my antibodies are too busy to show up anymore on a high level, and the lyme learns to outsmart these tests over time, as has been proven in multiple studies and scientific tests, but I am being treated based on symptoms, and my close tests together.

I am one of many that gets toyed with by medicine on an unending quest to find out the truth. Doctors seem like they are useless many times, and will not help. It's really sad when people with that much power choose to not help you, and let you suffer. Some people can get away with almost anything though, and this is especially true of people with power over whether somebody lives or dies. In many cases, if they'd just drop the all-knowing ego a bit, listen to their patient, get into action, dig a little, offer choices, and maybe believe their patients, then a difference could be made for some of these people who are sick. I was not making doctor's appointments to have a fun time, and I don't think it should be put off so lightly.

People are probably sick if they have to call a doctor. Even in the rarest of incidents where they really are hypochondriacs, this is also a sickness that needs to be examined and treated if there really isn't anything wrong. Something in fact is wrong on some core level if they are looking for medicine to help them in some way. It's a cry for help no matter how you look at it. There is no reason to completely ignore human beings who are asking for help. That's what they are supposed to be there for. I guess some forget that along the way, or something. I don't really understand the lack of compassion for others. Some responsibility and accountability would be nice from people in these powerful positions. It's on them and their conscience though. I'm glad it's not me.

I consider myself and my situation a test for others. Will they do the right thing when they have a chance to offer me something, as a sick person? Will they ignore me, when they have a chance to be there for somebody in need? What would the spiritual people of the world do in these situations? Other creatures in the world, and other tribal settings accounted for the sick, and the rest of the group would look out for them and try to make them well.

I don't think the government wants me well here, to be honest. I make them far more money being sick and on the system, as a cash cow for Big Pharma, and whoever else is profiting. It is a win win for them if I struggle, because I have to either pay up, or I die. If I got better, I'd be a direct threat to their jobs, and that's dangerous when it's somebody who has been through hell already. We lose the apprehensions that healthier people tend to have, and we know what it's like to have nothing. Many times those kinds of people take less for granted, and can do a better job, since they don't want to go back to the way it was, being miserable and having next to nothing.

I know this is getting to be a long-winded post, but I want to raise awareness about third stage lyme, and that it can indeed become chronic and wreak havoc on your entire body. I think most if not all of my current conditions probably came from lyme, and I don't want other people to end up like me. There is very little I could think of that would be worse than living a lifetime with the pain, tiredness, torment, and expenses of dealing with problems like this. I cannot work because I am too sick, but I need to get better in order to work again, and so that's where the bulk of expenses comes from. It's a catch 22.

I'm also including all the years I could have had an income, and I did not. In society, they want you to work, but if you're too sick to work, then you must get better, but if you cannot pay for treatment, then you remain sick, unable to work. It is a vicious cycle, and yet another facet of medicine I will not get into. There are even organizations like IDSA, that say chronic lyme does not exist, and people in the medical profession think highly of this organization, and they believe this garbage. It's maddening that so many people are overlooked, and considered hypochondriacs, or mental, depressed, or whatever they want to mis-label so many people that are suffering.

Enough about me. Please remember a couple of things:
Also just a disclaimer of sorts that I am no expert on removing ticks!
The information is what I've come to believe in my own experience based on the sources I read and trust most. There isn't a lot to go on with ticks/lyme.

  • There is a lot of bad information out there about how to remove ticks. One way that most people have access to is a pair of tweezers close to the skin, and a steady pull directly away from your body, without crushing, jerking or twisting, is best . If it's too fast or hard, you can leave the mouth parts embedded under the skin. A distressed tick can also regurgitate a lot of dangerous disease-causing germs into you if you try to use other methods to remove them, like suffocation or burning.

  • If you, a pet, or somebody you know gets tick bites, try to get treated with antibiotics as soon as you can. Push for at least 4 weeks, if possible as well. If your doctor will not get you at least 4 weeks of some doxycycline antibiotic by choice, find another doctor. I guess different areas have rules. I would check the rules for my area, and get the largest amount of treatment I could as early as possible. This can ruin your entire life. Not something to take lightly.

  • It's one of the most underfunded medical problems in my country, yet as many as 300,000 new cases spring up each year.

A quote from lymediseasechallenge.org says, "Although the number of new Lyme cases annually is staggering, there is relatively very meager support for research funding. Indeed, although the annual incidence of Lyme Disease is higher than that of breast cancer, hepatitis, colon cancer, Multiple Sclerosis, HIV/AIDS and West Nile virus in the United States, unfortunately federal funding of Lyme Disease has been extremely disproportionate. For example, Lyme Disease occurs 6 times more often annually than HIV/AIDS, yet it receives less than 1% of the funding from the National Institutes of Health compared to HIV/AIDS. Likewise, there are 141 times as many cases of Lyme Disease than West Nile virus, yet Lyme Disease receives less than half of the funding for research."

There is a lot of good information out there, and a lot of misinformation as well. There are organizations like ILADS, that I think come closer to the truth about lyme disease.

Please consider adding Lyme Disease Association to your charity list if you use HumbleBundle, Amazon (AmazonSmile), or other places you may have an option to donate to for charitable causes, if you don't really have a particular charity you are set on using. About 96% of all money that is donated here goes to causes that help spread more information and education on lyme, as well as other important missions, including finding lyme doctors for people, since a lot of lyme doctors try to stay under the radar in fear of being prosecuted for helping people with lyme. Hopefully it's okay for me to mention that, but if not I'm okay removing the organization.

Unfortunately, according to many states here, and their rules, things like Lyme shouldn't be treated with long-term antibiotics, but having acne is a different story, and long-term treatment of acne with antibiotics is okay. Doctors in many states trying to give antibiotics long-term for lyme have had their licenses revoked, and some have been jailed. It's very bad in some other countries as well, such as Australia. Just an example here, but there's something deeply corruptive at work here in the USA with double standards like the mentioned one above. Lyme can and will kill, while acne is more cosmetic. Anyway, the above mentioned charity is located in the town where my lyme doctor practices too, Jackson, New Jersey.

I found out I had lyme disease after living with my problems for over twenty years. I now have a real diagnosis. I feel liberated.


Please bump for:

  • The generosity of myself and others, and awareness of lyme!

  • Good karma!

  • Your own conscience, health and well-being!

  • To make me happy to add current giveaways!

  • To increase the likelihood of me adding even more giveaways at a more frequent pace!

  • High non-bundle giveaway chances in the future if it can get enough activity! So far not so good on the bump % - still dropping one or two non-bundles every now and then... but the % of joins vs. bumps just ain't up to snuff. Sorry, but it's kinda expensive, so just a small effort would be appreciated if you take the time to join something. Rude otherwise, IMO.

If you're feeling generous and would like to make a giveaway, this format below is awesomely appreciated!

[Superfabs Is the BEST EVER! - Level x+](http://www.steamgifts.com/giveaway/MaR10/MUSHROOMS) | your contributor name

GIVEAWAYS: (I will update this regularly, if I can, but I mainly wanted to express awareness unless something catches on).

*Let me know if you notice something that's already expired, and I'll remove, since I may not notice right away!


Thanks to D3D for this one!

Abalone (ends 1/1)

Thanks to Corran for these!

Beholder - Level 3

[Sniper Elite V2 - Level 3]](https://www.steamgifts.com/giveaway/36k15/)

Resident Evil Revelations - Level 3

Thanks to dubnio for these!

RUNNING WITH RIFLES - Level 4+

Seasons after Fall - Level 4+

Jalopy - Level 4+

Super Mega Baseball: Extra Innings - Level 4+

Jet Racing Extreme - Level 4+

SAMOLIOTIK - Level 4+

Loot Hero DX - Level 4+

Tap Heroes - Level 4+

No Turning Back: The Pixel Art Action-Adventure Roguelike - Level 4+

Lead and Gold - Gangs of the Wild West - Level 4+

Gunspell: Steam Edition - Level 4+

Thanks to insideone for these!

Scrollonoid - Level 3+ | insideone

HEXOPODS - Level 3+ | insideone

Dead Dust - Level 3+ | insideone

Purgatory II - Level 3+ | insideone

Lantern of Worlds - Level 3+ | insideone

Super Blasting Boy - Level 3+ | insideone

Thanks to Kyrrelin for this one!

Punch Club

Thanks to Vee79 for this one!

Galactic Fighters - Level 1+

Thanks to Zorskan for these!

Rise & Shine

Pinstripe


Thanks for all of the support!
LET'S KEEP THE AWARENESS ALIVE!! THAT'S WHAT THIS IS ALL ABOUT! PLEASE COME BACK TO BUMP HERE AND THERE

7 years ago*

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We use these to remove ticks from our pets (and ourselves on those rare occasions that we get them). Much better than tweezers and a tool you really should get if you have a pet or live in an area with lots of ticks.

View attached image.
7 years ago
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Whoa, those look pretty interesting.. I will have to look into them for sure! Thank you for the information!

7 years ago
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Most pet stores have a cheaper plastic version as well that looks like a measuring spoon with a notch cut out of it... though I have mixed feelings on how 'safe' they'd be to risk on a human, I feel like the spoon version has a risk of pulling off the ticks head.

7 years ago
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Yeah, they're so small and it's such a dangerous thing... I think it's probably best to get the most reliable thing you can find when it comes to something so important as the possibility of getting any of these dangerous diseases they can spread. There are so many coinfections that are even more under the radar that they spread (like the mycoplasma I mentioned), and nobody knows just how horrible these things can be. I think a few extra dollars is worth it in the long run, since you cannot put a price on your health.

7 years ago
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Thanks for the info, Superfabs. The US health care system definitely needs to change for the better.

7 years ago
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You're welcome. Yeah, the tick thing is crazy almost everywhere, but I hope things will change eventually so people who are suffering get more care that could benefit them.

7 years ago
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Bump.

7 years ago
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Thanks ^ Bumping again :D

7 years ago
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bump

7 years ago
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Bump!

7 years ago
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Bump

7 years ago
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Thank you for sharing.

7 years ago
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Tossing in a giveaway for support.
https://www.steamgifts.com/giveaway/zENJk/medal-of-honor
Had a lyme disease scare with my father when I was little. He's honestly lucky my mother forced him to go to the doctor or he very well could have been in your situation.

7 years ago
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Thank you for your support! I am glad your father was able to get treated! I'll be adding your giveaway to my discussion up above. Very thoughtful of you!

7 years ago
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bump :)

7 years ago
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Oh my. I never even knew lyme was this bad. I am really sorry to hear your story. I guess there isn't much I can say to make you feel better.
So... take care. hug from my bunnies and next humblebundle i get I will pick the charity.

7 years ago
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It's good to have support, so it means more than you might think. We are stronger with that extra support I think... no matter how much it seems to not matter so much - so thanks a lot for writing! I'm glad to read it.

7 years ago
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Bump

7 years ago
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Bump and all the best. :)

7 years ago
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This is a bump for the thread that never ends. :D

View attached image.
7 years ago
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The LUCK DRAGON! It reminded me of this... It's either a luck dragon variation, or a man in a costume maybe? I cracked up when I first saw it a while back...

View attached image.
7 years ago
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Bump

7 years ago
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I can't say much because I'm still shocked with this story. Thanks for sharing with the community and congrats for being such a warrior.

7 years ago
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Bump for excellency and information.

7 years ago
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Reading posts like yours makes my normal empathy kick into overdrive, and my sadness for people like you and loathing for big pharma/big agribusiness expands tenfold. The world would be a much better place without the profit motive "incentivizing" scientific research instead of humanitarian desire to aid our fellow people.
Here is an entire tumblr about people in various Star Trek series being warm to one another, because, dammit, if everyone treated each other with compassion then the world would be a lot more like Gene Roddenberry's vision of the future.

7 years ago
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Thanks - that is awesome! We do need a lot more of that in society today. Very unfortunate there is not more nurturing and building people up, rather than competition and greed. It's become money over morals in a lot of areas and professions... I have a lot of theories on why this has happened to such a large scale these days, but I won't get into that. Times sure have changed. At least it seems that way to me in my limited perspective on things...

7 years ago
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Bump - I really hate ticks. I got bitten so frequently when I was a kid, I'm glad nothing happened.
Global warming even causes the tick population to grow and spread every year in germany 'cause there aren't enough days in a row having below 0°C (what would kill the majority of them) the last few years.
Might add a GA at a later point, have a bump for now. :)

7 years ago
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Thank goodness nothing happened! Those ticks sure are resilient... it's pretty scary how armored they are. They do one thing, and they do it well... Thanks a lot for the bump!

7 years ago
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Bump for awareness, fuck ticks.

7 years ago
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Wow! What a good post!! I hope that you get better step by step! Best wishes to you!

7 years ago
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Thanks for the kind words!

7 years ago
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7 years ago
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Thanks a lot! I have tried medical grade and it is amazing! The only problem is the expense. I just don't make enough yet to afford it. I have a hearing next December (2017 - things sure are slow with courts) and it might raise the amount I make, where I could possibly afford more medication and herbals and other things for my health. It's a rough budget though, especially at the moment. Yes though, the cannabis is probably the best medicine as far as complete package of what all it helps that I have tried. There are really no dependency issues either, or risks like with the other pharmaceuticals, since it's not really being altered to the point that the pills are. Also the fact that there are literally zero deaths from it make me very upset that it's a Schedule I substance which is saying there is no medical benefit at all and that there is a huge risk of dependency/addiction. That simply isn't true for anybody I've known ever, or myself.

This state has medical MJ legalized though and I have looked into it. I think I have a few conditions that would qualify me for it if I am able to get a little more money each month though. I think it's at least $300 per oz. here last I researched, plus the doctors won't likely be supported by insurance, since I don't think government insurance doesn't really want to be tied to them in general, and then there is paying for the card or whatever they use these days for proof on top of the expenses for purchasing. I would definitely try going for it once I have more to spend. It is definitely the best thing all around I have tried, and there are other forms besides the inhaled, which is pretty good too, since I quit smoking cigarettes a few years ago - that part is probably not especially healthy, but I don't really know, since it is a lot more natural than the commercialized tobaccos. I could probably knock out about half of the medications I'm taking just by replacing it with cannabis.

7 years ago
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i feel your pain man, i got coccidioidomycosis 12 years ago and it destroyed half of my lungs before they found out what it was as it was not common were i lived at the time,there is very little known about the long term affects of the disease but i can tell you from experience that it causes sensitivity to just about anything around you including humidity,air pressure,pollen,many foods i used to be able to eat as well as most strong odors,when its humid my lungs fill with water making breathing hard and limbs numb,when the air pressure rises it feels like im getting the worlds largest/longest bear hug while making my lungs feel like they are stuffed with cotton,strong odors and some foods make my neck close up and i get a itchy rash in my throat also making breathing hard,some days i wake up with no feeling in my arms or legs depending on the weather making even simple tasks near impossible,we recently moved to Arizona to try a dryer climate for me with a more stable air pressure system.

besides my DR's and my wife everyone else in my family and my wifes believes that this is all in my head or that i am making it out to be worst then it is because they only see me on good days the bad days i struggle to get out of bed and when i cant breath well i also cant think well as my brain is being starved of oxygen so needless to say i wont drive like that,just tonight my daughter threatened to stop talking to me if i didnt start to go back to the Dr's and she wants me to see a shrink as well(she is 21 and is in collage to become a Dr and psychologist) she wont listen to the fact that i had spent 8 years going to Dr's and not one of them knew how to treat me or could help me other then giving me antibiotics when the fluid in my lungs turn to pneumonia which happened every few months for the first couple of years and basically destroyed both me an my wives credit paying medical bills.

to make the problem worst and likely why they think its in my head there is very little if any research on the long term affects of coccidioidomycosis and the fact that some people can get it and not know it thinking its just a flu or cold and it passes with no long term affects,mine on the other hand disseminated and will be in my blood steam for the rest of my life something there is also very little known about,there is one drug that is used to combat it but is only supposed to be taken for a very short term like a month at the most because it attacks your liver..they had me on this drug for over two years before i started to have a lot of pain in my groin and i stopped taking it,the drug does not kill the infection all it does is suppress it and is supposed to be used to just keep it down til your body is able to fight it on its own that never happened for me but did get it out of my lungs leaving me with a soda caned size hole in my left lung and a fist sized hole in the other both now filled with scar tissue,there was also a small research team here in Arizona that was trying for a cure for cocci and there first tests were promising with like a 90% cure rate for people who had it for less then a year, at this point i had already had it for a little over two years and they would not let me into the trials as they were only testing people with it for under a year but told me they might take me at later study's another reason we moved out here...well they lost all there funding because Big Pharma did not see profit in a pill that you could take once and totally kill off the cocci in your body not to mention there is only about 100,000 new cases a year out here with most of the people not needing a cure because it gets caught early or there body takes care of it before it has a chance to spread.

all this because i inhaled a dust particle that decided to grow in my lungs.....scary world we live in when a single bug bite or particle of dust can basically ruin your life, destroy your family, or kill you...

7 years ago
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Wow, I had never heard of it either. It sounds very difficult and painful! I am sad to hear it, but at the same time in certain ways when I hear stories it helps me realize I am not alone, and there are others going through very rough illnesses and difficulties too. Even though you explain a lot of different symptoms than my own, I can relate in many ways, and I've especially felt the parts where my family thought I was not sick, or making it up - mainly for me it was before I got a diagnosis. Mycoplasma is usually similar in how you explain, but not always, since there are a few other types and forms, but the main kind starts out as mycoplasma pneumonia, which they also call walking pneumonia, but most people hardly notice it, and it passes through their systems relatively quickly. The test I got showed high levels of the mycoplasma pneumonia, but they may all come out with the same signiture, since it is most common, not really sure. For whatever reason, mine never left my body either, and it became a systemic thing, but I suspect I got it with the tick bite, where the lyme lowered my immune system to a point where the mycoplasma could stay in as well, and I could not fight it off. So, it wasn't transmitted the common way, but it isn't uncommon for tick bites to have it in them too, since they can carry a lot of other coinfections.

It is so unfortunate that if there are not many cases of something, they won't research it very much since there just isn't any real profit in doing so. That's how it appears with a lot of the lesser known problems people can pick up - and there are so many of these that are barely known about by most people. If I start looking up symptoms and check out various things online, there will be links to several different things that can cause the symptoms with similarities that I've never heard about. So much information out there, and the real big problem is that most doctors don't even know about these smaller illnesses, much less how to treat them! Most of the doctors and specialists I have seen did not know what mycoplasma was, but my lyme doctor was aware of it, and that's who tested me for it.

I also have a lot of problems with heat intolerances and problems with humidity too. Mine is more a fatiguing feeling instead, and I feel this weighty feeling all over my body, which gets worse with heat and humidity. There is also this constant weight in my chest too, where it feels even harder to breathe, even though my lung function tests come back as being fine... I do have asthma, but it's not a very bad case. I think I picked it up as a young kid, since I have had severe dust allergies all my life. Unfortunately the inhalers don't give me any relief, so I gave up on them pretty much. Swimming is about the only thing that removes that weighty feeling though, and I can be pretty active in the water still to a much larger extent than when I'm on land.

My life has certainly changed though, and I can tell from the sound of it you also go through a ton of issues every day. Right now, for me it's just living day to day pretty much, making it through the really rough ones. I have those really bad days and then there are some that are a good bit better. I wish you well in managing and dealing with your symptoms as much as you possibly can. I hope medicine some day will find ways to help us live even easier, or eliminate the problems with these kinds of things completely so less and less people will have to endure things like this!

7 years ago
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yea i have ran into the same issues with Dr's as well i have seen over a dozen of them and only one of them actually knew about cacci prior to meeting me,its funny you mention dust as i also have a dust allergy always have..well for me it was tested as dust mites that i have an allergy to kind of hard to avoid those as they are everywhere lol,but yea ticks are a hudge problem out here as well but not many of them here have lyme its mostly Rocky Mountain Spotted Fever that they pass here,my poor dog when i bought him had over a hundred ticks on him when we got him from a breeder and we can tell they tried to remove a bunch prior to us getting there as we were seeing and trying to pick out tick heads on him for about a week after we got him,hes a year old now and we have had him tested three times for tick based diseases and so far amazingly he didnt catch anything from them,i myself am very paranoid of them and check myself for them any time i go outside in a wooded area or the lake but ticks out here seem to prefer non humans.

7 years ago
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I cannot begin to imagine what it must be like to have to live with so many symptoms all the time, for so long. I know that I personally could not cope, so you must be extremely strong minded to do so. Many thanks for the GAs.

7 years ago
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You are welcome! Yeah, I didn't think I would ever be able to, but somehow it just started to happen as I went through it. I think we are a lot stronger than we realize when it happens, but yeah, the thought of it originally... no way I would have thought I could still be doing this like I am today. I've gotten better and better at it with practice and more understanding, like training my mind and attitude almost. So now it's not nearly as bad as it would be if I was well one day, and then suddenly had all this. That would be probably impossible for me, and I'd be calling an ambulance or something thinking I'm about to die or something. It's weird how all of that works, but it is a new and different perspective for me, that is for sure!

7 years ago
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Damn, it's a sad story. I want to believe that you can do with it...

7 years ago
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I will, and thanks a lot! Good to have some support.

7 years ago
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Bump! :)

7 years ago
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Closed 5 years ago by Zomby.